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| Hi - I found this forum trying to find Senokot Granules online (they've just discontinued them - aargh!) My son is 6 going on 7 and was diagnosed with Encopresis early last year, at the start of Prep. His paed advised me to give him Movicol Half which meant a week off school for my son and a week off work for me. I was warned that training pants would be the way to go as my son would have no control over his motions. Well, he did get a good clean out and has been on Senokot choc flavoured granules since then. I changed my work hours so that I could start later and would take him to school after he had sat on the toilet and had a bowel motion, usually by about 9am-ish. I found my day revolving around my son doing a poo and was anxious to know whether/when he had pooed etc. I felt obsessed with his schedule - I'm sure you all know about that! Paed said not to take him off the Senokot until he'd decided he would be okay without it. From being a little boy who avoided pooing at all costs, he now goes daily without prompting, by himself, wipes himself well and is happy and without tummy pain. So today I went to the chemist and discovered this product has been discontinued! And have rung around town and no-one has any old stock. My son has Asperger's Syndrome and doesn't take kindly to change so, although there are many other similar laxatives on the market, my dilemma is which one to replace the Senokot granules with (he's had lactulose before and tolerates it but doesn't really like it but it doesn't work quite the same way as the Senokot). This means I need to ring the paed tomorrow for his advice on an alternative. Blast the pharmaceutical company for deciding they weren't making enough money from this product! Anyway, I just wanted to give others hope that their children will eventually become self-sufficient re the toilet, some quicker than others. I just hope this means we don't have a problem backsliding if we can't find something my son will take happily. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Julie, You're not alone. My son is 13 (14 in Nov), and we've been going through this since he was 4. Unfortunately, I didn't realize this (encopresis) was the problem until about a year ago. I knew he had been constipated, but didn't realize the problem was ongoing and that the soiling was from that. We wrongly assumed that he either wasn't wiping (since there was no paper in the toilet at times he hadn't flushed), or was wiping poorly. It wasn't watery, it was of thicker texture - sorry for the mental picture - so we just assumed wiping was the issue. Now, of course I feel horrible, but it was never explained very well by his regular physician. It was one of his colleagues that explained it to me - then suddenly there appeared a light bulb. Anyhow, we currently are under this regimen: 1 capful (17gm) of Miralax plus 1 Tbsp. Benefiber (fiber supplement that dissolves completely in liquid) in apple juice in the morning with breakfast, and then again in the evening. He is eating somewhere between 35-40gm of fiber/day, and drinking plenty of water. We've cut down diary, but not completely out of his diet and have added in calcium chews. We've had weeks where there was very little soiling (1 or 2x/wk) to weeks that it's every day - but usually only once a day. He has been having stomach aches for about a year (the time of the official encopresis diagnosis), but we're not 100% sure that the upset stomach is from this problem (we're still going through tests to figure this out). We had 2 KUB xrays about 6 mos apart and there wasn't any significant improvement in the constipation. He too was (possibly still is) full close to the top of his intestine. With all the miralax, etc. that we've been doing, one would think he'd be getting cleared out at SOME point! My daughter is 4 yrs younger, and we've not had any health issues that have affected her from his problems - hope this helps you feel a little better in that area. |
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| My daughter is not yet a teenager...she will be 9 yr. old in May. So I can't say I know exactly what you are going thru but I have been dealing with my daughter's encopresis for 5 years, and have been at "my wits end" many times. Throughout our process, she was diagnosed with having Attention Deficite....so is currently on medication...which hasn't eliminated the encopresis, but it has helped with her behavior and focusing. Ater hours and hours of my own research and looking for anyone who could help us, we (my daughter, husband and I)have been getting support from a psychiatrist, psychologist, and play therapist, which fortunately has not cost us anything. I, as a parent/mother, have been challenged to "let go". There is nothing more about toilet training that I can teach my daughter. She has heard from a play thereapist for 8 months, (as well as her parents), what is appropriate and what is not. She knows! I can't say I've disengaged 100% but I know that the more responsibility I take, the less she takes. So in the past couple months, I have stepped back (both physically and emotionally) and let her deal more with the consequences of her accidents, which has resulted in her taking more responsibility. From my research, I know that there are other teenagers out there who have encopresis...so you are not alone. My suggestion would be to reach out and seek support to help you as a parent. I'm a firm believer of reaching out and talking with others, until you find what you need...support is out there, if you don't isolate yourself and keep looking. Hang in there! |
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| My son is 14, 15 in July and has been suffering encopresis since he was small. I've tried everything and been subjected to everything. Movicol Paediatric was the only thing that seemed to work, when he chose to take it. He does have behavioural problems too. I've had the social services involved because of this and was accused of mentally and emotionally abusing my son, the encopresis being the result. I knew this wasn't true. From potty training age the only thing I could get him to do was urinate. If I tried to get him to do a b.m he would cry. He was much happier doing it in trainer pants. He graduated to using the toilet easily, but would still not go for a b.m unless he really had to. Years later, about four years ago, I took him to the paediatrician for an x-ray as I noticed his abdomen was becoming distended. I was horrified to find the x-rays showing he had complete faecal impaction. He'd been holding it in for so long, it had backed up almost to the top of his intestine. But I couldn't understand why he'd not been violently ill with it. After doing a lot of intensive reasearch, I've now discovered that, thank goodness, it's nothing I've done wrong. Yes my son is stubborn and disruptive at school and at home but I now know that the two are linked and that he is more likely, because he's a boy, to suffer from it. I've always supported him, and done my best to find out why he's doing it, but I always get the same answer. "I don't know". Is there any one else who has a teenager with this problem? I am at my wits end. The smell not withstanding, he's also smearing too. As I also have a 20 month old son, the health and safety issues here are all too apparent. I would appreciate any advice or just to hear from someone with the same problem - so I know I' not alone. Thanks. |
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| Thank you so much for your reply. I have certainly felt like a stranger in a foreign land with encopresis, but it has helped reading back thru people's experiences. My son's gastroenterologist said to me on our last visit, "Don't beat yourself up too much, I don't think your son will be walking down in the "aisle" in nappies!! This gives me hope, I guess! My son's therapist also said, "Let him have his own internal conflict over what to do about his poo." As it turns out, most Mums take on the role as the "solver" in our families, the problem with this is that we take the responsibilities away from our kids and they then continue with what they always do becuase Mum will take care of it!!! This goes for tidying rooms too. So we were given a month to say nothing at all about it. Interestingly enough, our son's confidences grew in other areas like eating, playing, sharing. We are waiting for the pooing, of course. Still, every day is movicol day. At the moment we are going triple dose days for he seems to have back logged again. Then we start again. This too will pass, I hope. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi...if it helps any, I know exactly how you feel. My daughter is almost 9...and my best suggestion is to take "One Day at a Time". Easier said than done...I know. It is difficult to stay focused on the glass half- full, somedays. Taking your own suggestion is the best advice of all....not wanting to wake up in 10 years and realizing that you missed out on all the fun. There are NO simple, concrete answers to cure encopresis. And I think the reasons for encopresis in each child are different...which is why it is difficult to treat. There have been many ideas presented in the past postings...you might find it helpful if you go back and read them. As parents, it is so important to remain hopeful that it will end and there is a solution for each child. I often remind myself that it's not life threatening and my daughter is not going to die from encopresis. I'm at the point now that I need to turn much of this over to my daughter. She's almost 9 and I can't teach her anymore about the toilet training skills...there's nothing more to learn about potty training. She knows most everything about toilet training and exactly what is appropriate and what's not. The more responsibility I take..the less she takes. So if I take less responsibility, she'll have to take more. So...when she has an accident, she cleans herself up and takes care of the situation. I worry about what will happen socially...but I trust she'll figure that out for herself. She is in grade 3 and she doesn't have accidents at school, so that's very hopefuland tells me that she is very capable of not having accidents. Her accidents happen mostly at home, so if I start ignoring them as much as I can, and let her deal with the situation, she's smart enough that she'll eventually stop holding her stools and go to the toilet. I still give her about 8 g movicol each evening because I still worry about her getting constipated. Letting go is a process for me..as parents we do our best! |
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| Our son is 4 and a half years old. He has had encopresis for about a year. We have spent enormous amounts of money seeing numerous GPs, a Peadiatrician, Gastroenterologist, Occupational Therapist and Psychologist. Yet our son is still in nappies and doing sneaky poos. The best help we have had is a box of Movicol, from any chemist! An x-ray was also helpful, albeit a nightmare in trying to actually get him to lie still, for we could just see how much poo was blocked throughout his intestines. It was quite alarming. REsearch says that only 50 - 75% of kids who have encopresis will indeed recover using laxatives such as Movicol. I am feeling like the "glass half empty" type of Mother and wandering when this hell is going to end. I have felt depressed and withdrawn from friends and family and often prefer to stay home so that we don't have to explain our son's nappies and contant "smell". We have spent thousands on a Child Psychologist and she has been fantastic, primarily for equipping me with coping strategies. I am scared for him for when he starts Prep in big school next year. He currently goes to Pre-Prep in a Childcare Centre 2 days a week. I don't have any answers, except I don't want to wake up in 10 years time and realize that I missed out on all the fun with my Pre-Schooler because I was too obsessed about his poos!!! When will this journey end? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| You're absolutely right sosoxy. And with my 2y.o. being a boy and the ratio of encopresis being higher in boys I'm definately not going to be putting any pressure on him. I'm also currently expecting my 4th child due in May and it would be ideal not to be dealing with 3 of my 4 children in nappies or soiling themselves but I'm slowly coming to terms with having to deal with this one day at a time! Any thoughts on megarectum? I have finally reached a good 'consistency' with my 4y.o's stools(with the help of medication) but she is still doing them in her knickers and last night in the bath :( Thank you so much everyone for your understanding!! :) |
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| Hi,...this is just a suggestion. When my daughter was 4, she was diagnosed with encopresis and my other daughter was 2. I decided that I wasn't going to push my 2 yr old and just let her tell me when she was ready. By age 3, she was out of nappies. She still had some accidents but for the most part she was toilet trained. My 2nd daughter does not have encopresis and she is now 6 yr. old. I know exactly how you feel right now with a 4 yr old and 2 yr old both not toilet trained. I've been there, but they do get older. If I could toilet train my oldest daughter all over again, I would let her be in nappies for as long as it took....I think I pressured her too much when she wasn't ready. If she was in nappies now until she was 4...I wouldn't care. But at the time, I thought she should be toilet trained. Sometimes I wonder if the extra presssure I put on her, contributed to her holding her stools..hence the encopresis. I don't beat myself too much....but I didn't put the pressure on the 2nd child, and she doesn't have encopresis??? Better go for now. |
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| Hi Chendroff. Please excuse my ignorance, but are you from Australia? What is this Movicol and how does it work? I will soon be looking at toilet training my 2y.o. son and will not be surprised if I encounter similar problems that I am experiencing with my 4y.o. To tell the truth I am finding it difficult deal with the progress(or lack of) that my 4y.o. daughter is making with her toileting, that I would prefer my 2y.o. to stay in nappies until he's 3! |
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| Hi Everyone. So very happy to find this forum. Both my children have chronic constipation. My 4.5 year old son has had problems for at least 3 years, has been on Movicol(full)for the last 9 months, currently having a 1/3rd a sachet a day and 10ml of lactulose. My 21 month old daughter became constipated as soon as she started solids and has been on Movicol half since Dec 08, currently on 2 sachets a day. It was very difficult to get a Dr to believe she also had constipation but it got to the point where the impaction under her ribs was reducing lung inflation. I really had thought I was going through this alone and I cannot wait to look through the past posts to look for information and advice. I have one before I go back a review posts, is it common for 2 children from the same family to be experiencing this? Currently my children are being seen by different specialists as my son also has developmental issues. When I discuss with each of the Dr's the other childs problems they shrug it off as being unlucky. Should there be any conditions I should be considering or tests I should be asking for? Any suggestions or advice would be greatly appreciated. |
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| Hi everyone. I am new to this message board after searching and searching the net on new information about my 4y.o. daughter who has been experiencing difficulty in toilet training since the arrival of her baby brother who is now 2y.o. She is currently on parachoc and lactulose, 15mL of each/ day. I have also put her on pro- biotics, psycillium husks, 1 kiwi fruit and 1 cup of pear juice per day. I thought our problems were solved about 2 months ago when she was doing a daily BM of good texture etc.(sorry about details!)which was initiated by a few microlax enemas. This continued for about 3 weeks. However she has regressed on this and we are back to square one, what's worse is she is now refusing to have an enema(and I'm guessing glycerol suppository, but we have never used one) for fear of the pain in her bottom. I don't want to force her, hold her down(bribery doesn't work either) for fear of more psychological damage. My next step would be to maybe give her nothing but fruit for the next few days? I suspect this may give the opposite effect of diarrhea(?), but it will clean out the colon. Any suggestions would be most appreciated! |
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| Thanks for this resource. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| As a mother with a child that had encompresis and can recommend Kimberley O'Brien, a child psychologist that worked with us. The results did not happened over night but she was fundamental to help us find a solution and help my daughter to accept responsability. her web site ishtttp://www.childpsycho logist.com.au. hope this is relevant mj |
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| Hi, Just a quick response to say...."YAHOO". You must feel so relieved. NO ONE can predict the future, so I say..."take one day at a time" and enjoy the moment! Don't ever try to figure any thing out about encopresis...you'll drive yourself nuts. Encopresis is a very complex condition and makes no sense. Sounds like the cleanout turned out positive....as long as he's cleaned out, that's a good thing. |
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| Sorry I keep over doing it with my posts but I feel better if I "bash" everything out as I have no one to talk to about this "yet" only my husband. Its Wednesday, no dirty underwear for nearly a week now (Monday 1 accident due to laxatives) but like I said cleaned HIMSELF out on Monday, on Tuesday I told him a couple of times to sit on loo but no BM (I dont expect him to perform everytime I ask) but he went off himself and done it when he had to go on Tuesday??? without being told!! Today (wednesday) I asked if he needed the toilet in school today (my biggest fear) and he said I went for a poo today in school, THIS HAS NEVER HAPPENED BEFORE. He has been in school now nearly 6 months and has only ever used the toilet there to wee. He told me he got his Kandoo wipes out of the bag and asked the teacher if he could go. This is amazing progress. Im flabbergasted and like I said before I am still questioning whether he has this condition or not. Is there anyone out there who has actually been in the position I am or is this not the behaviour of a child with encopresis. Before Movicol like I said, it had got to the stage of very very big BM and leaking a few days before he would pass that. Before this stage we had the poo straight into the underwear or on the floor. I know I should stay positive but I think I am so scared of being brought back down to earth with a bang!!! So far from what I am seeing, taking a calm approach, explaining things to him, seems to have taken the fear out of "doing a poo". Plus he has now experienced soft ones which is all new to him and maybe this has slowly gained his confidence. I think him going to the toilet in school is a major step in the right direction. My hope is "if he has done it once he is sure to do it again". Sorry again to be posting all the time, just want to hear opinions on this, cause its all sounding too good to be true to me. |
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| Update:- Im soooooooooooo confused but happy at the same time, not sure if everyone experiences this as I am trying to figure out if my son now actually has this problem. After clearing himself out yesterday (all on his own) he went off to school this morning, came home (underwear clean) I asked him to sit on the toilet and off he went. and had a BM. About 2 hours later he said "I need to go poo" and again he went. I did ask him that time "did he know that it was coming" and he replied "yes"?? Normally I would see my son trying his hardest to squeeze the cheeks of his bum together whilst walking to the toilet but since Sunday there has been none of this, like he is not even trying to hold it in as he is walking which gave me the impression that he "must have some feeling/sensation" because they are soft and nothing is going onto his underwear and even his bum is remarkably clean as if nothing had even attempted to come out before he actually went (if that makes sense). He is getting one sachet of movicol every night and its so strange to see his stools so small and soft (have not seen that in a long time). Are things looking very good here or is this the norm (going off by himself/no messy underwear). My son had gone past the stage of doing full stools into his underwear (about 12 months ago) but he was more leaking than anything else when he had not been for a few days. He has been excellent (considering he is very very stubborn) at doing what I ask, he is drinking a cup full of orange juice for me everyday, something he never liked. I also have him started on Yakult everyday. I am very calm about it all but so confused as I am starting to question myself now if he really does have encopresis or was it just a pure fear of going to the toilet but now that he has experienced the "soft" BM he is building up confidence again?? Im sure someone is bound to tell me that "it wont last" but for the moment I just cant believe what I am seeing. |
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| Hi, I have just found this site and have been brought to tears. Fiinally! I have found some others going through the same struggles. My 4 year old son has had this problem for about a year and a half and it has been a very difficult and traumatising time. I am so scared for him when he starts school next year that he will be teased and have no friends if this is still happening to him. I already have a daghter with an anxiety disorder and add who is having a hard time at school, and I am fearful that my son will too. He has food intolerances and allergies as well as some ODD behaviours which makes the whole process that much more difficult. I am really trying to not make a big deal of it at the moment as it just makes his behaviour worse. He soils anywhere from 4-10 times a day. Sometimes he knows when it is coming and goes and hides, but a lot of the time it is just there and he doesn't realise. I am finding it really difficult to understand it all. His doc has him on actilax and senokot granules, but he refused to take the granules so now has dulcolax drops. He still is going in little bits with the occassional medium bowel action so I am not sure if this is the answer for him. Any advice would be really appreciated. thanks fee |
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| Hi lisarei57....from my perspective, I think you're on the right path....the poo is coming OUT!! Sounds like your son is starting to get cleaned out. According to what I have learned, the encopresis will not improve if the child is constipated, so if the poo is coming out...that's great! Sounds like the consistency of your son's poo is soft and from what I've been told that's necessary too. And if he goes to the toilet on his own, that's a good sign too. As far as being confused, I think everyone involved is confused...including your son. Just take one moment at a time. Hang in there! |
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| After the accident this morning (just the one that ran out of him) he has been going all day about every 30-60 mins. They are soft and normal but he is saying to me "I need to go poo mummy" and off he goes and does it????? Sorry if its too much information but it is like ice cream you would get on a cone texture. Sorry again but he is managing to go to the loo with no problem whatsoever?? I am totally confused with this I really am. No dirty underwear nothing apart from first thing this morning. Can my son feel when he needs to go or is it nearly out when he gets to the loo???? I read some stories and my son sounds very mild compared to some children yet the symptoms are the same. I wish I could get some help somewhere whilst waiting for the hospital appointment! |
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| its a Monday morning and the laxatives have really kicked in. Talk about going around in circles, yes its great he is going but now its just coming out of him with no control. I cannot send him to school. He is getting stressed about it which I hope wont set him back as he is being great at following everything that has to be done. Any advice anyone??? |
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| Ok so an update, my son went to the toilet whoooo hoooo. He just went off on his own and done a normal one straight into the loo. Second time he never made it to the loo as he said it just "slipped" out (I presume cause of laxatives). Third time he went to the toilet and done it into the loo with a little bit on his underwear. I am so happy guys and I know (pretty sure) he should stay clean at school for the week. School is what is worrying me so much, the thought of one child saying "you stink" just breaks my heart and I know that this could be very damaging long term for my little man. His mood today is back to loveable well behaved little boy. What works for me is letting my son decide when he wants to go to the loo. Yesterday I followed advice on trying to get scheduled toilet sits going and he just could not cope with it. I know it has to be done but today was huge progress. After he had been to the loo his words were "I think the robots wires are starting to get attached". Amazing!! I know I have a long long way to go, but knowing I can keep him clean in school by him going at the weekends is a big step. |
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| Thanks again, we had a very bad day yesterday as I think I stressed the pure child to the limit. I could tell by him all day that he wanted to go and I told him so many times within one day to sit on the loo that I think he just totally lost it. His mood has changed within the last day or 2, gone from a loving little boy who never needs correcting to a grumpy, upset at the slightest thing little boy. I actually had a good cry yesterday as it really got to me. I had tried a suppositry yesterday and there is no way I want to go down that route, the poor child was distraught and no amount of nice talking was going to help him. I dont think this is the way to go at all!!! I was even reading up about the condition ODD and it scared me to death as my son seems to have these symptoms when he has not been to the toilet for a few days????? but once he has a BM he is back to his loving self and there is a definite pattern to his behavour so does he have it or dont he??? My partner is giving out to me for reading so much and I know he is right, I HAVE TO STOP OR I WILL DRIVE MYSELF MAD. It will be roughly 2 months before I get an appointment with a hospital and I have decided I am taking this time out to come to terms with this and get myself in the right frame of mind to start dealing with it. He did eventually go yesterday but it was nothing worth talking about and the poor child was so distressed it broke my heart. When I put him to bed last night he had a heart to heart with me, yes he wanted to talk??. It was a very strange experience as he was referring to this problem in his tummy as a broken robot. I went along with this theory and we ended up in a long conversation about this robot in his tummy that needed fixing and how all the wires have got jumbled up (sons words not mine!!!!) so hopefully if I learn to calm down we will be able to work very good together!! Sometimes I think it was easier not knowing what this condition was |
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| If you read previous postings by "ireadlabels", you will find out more about Fructose malabsorption (FM). | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi My daughter's pediatrician doesn't recommend suppositories...because it is traumatic. We haven't give our daughter suppositories for almost 3 years. My understanding is that the suppository empties onlythe lower portion of the bowel but not the entire intestine, where there could be blockage. I would talk to your Dr. before doing anything. Cleaning the bowel mean literally cleaning the entire intestine of all Stool. Giving the child so much laxitive that in about 3 days there is no stool. There are laxitives that are safe, but I would recommend talking either to your Dr. or pharmacist. Sounds like your son's bowels are stretched and have no elasticity. My daughter's pediatrician told us that if the bowels are kept consistently cleaned out, the intestine will rebuild elasticity and muscle....eventually. That's why it is imperative that the bowels are empty. It's a smart idea too to have other testing done. You might want to get his thyroid checked too. A celiac test is quite easy to do, and if it's in the family, it a good idea to get your son checked. Someone else on this forum discovered that her child had fructose malabsorption You might want to go back and read thru to get more information. Hang in there! |
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