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| Since he is going everyday I don't think it is constipation either. I wonder if it is comming on quickly and he can't make it to the potty. Meds can really mess up your tummy. I am using probiotics and kefir but maybe I will look for something more. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I'm afraid I can't help too much with your problems with your son except to say encopresis comes about through constant chronic constipation (not in every case but most). If it is this, you will need to monitor him every single day to ensure he is having a bowel movement - and in the toilet and nowhere else so making sure he uses the toilet at appropriate times throughout the day. Probably the best person to speak to would be the GP - laxatives help get things moving but encopresis has to be monitored constantly to ensure the constipation doesn't return. It doesn't sound to me like it is encpresis though, it sounds more like it could be a side effect of his meds? |
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| Hi. I was glad to find some help here since this is a topic few people seem to get. My son is seven. He has a disorder called PANDAS OCD which is a reaction in the brain to strep throat that causes psych symptoms. Basically it is compulsive movements such as knuckle cracking against his face, or getting up on his tip toes, or urinary frequency. Also he has had vocal tics like squeals or shrieks, and a mood temperment and attention issues like a short fuse. Plus he hyperfocuses on things he likes and obsesses over buying things. Of course a host of learning and motor issues have come with this too. So he has been on meds for these problems. He takes Omnicef daily and Abilify and Celexa. In Jan. we tried to add ADD meds and they just made his problems worse. That is when he started picking at his bottom through his pants. I was worried he was not wiping well and bought wet wipes and used Vaseline and creams on his bottom. Then he started having messy bowel movements and getting it all over the bathroom floor and toilet. So we stopped the Strattera because we thought it was upsetting his stomac. Also tried worm meds since he was still digging at his backside and sliding on the floor and registers. Now six months later he is still digging but now he is messing in his pants everyday because he doesn't make it to the bathroom on time. I don't know if it comes too fast or what is the issue but he gets some in his underware and makes a mess on the bathroom floor etc. What can I do? This is something that is pretty obvious with his digging in his botom and it smells when he messes himself. The Celexa has not helped. I would appreciate any suggestions on what to do? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I'm here if I can be of any help? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi I just read this post and was wondering if I could ask you a couple questions since we are dealing with this issue. Thank you. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Jane, Your story is very sad. My boy is 15 and still struggling with this, and I admit not taking him to the doctors when he was young, as I didnt understand the condition, and thought I could help him. Eventually he did go to the doctors, but was just put on movicol twice a day then once a day, and never had a proper clearout. I have asked 2 doctors about it, but they both say its not necessary, although everything I read says it is. The new dr says he will refer him to a clinic, but he says he wont go, in fact I had to go to the new dr on my own, he wouldnt come.Now he wont take the medicine at all. I have tried giving him stuff to read, he tears it up, and I try to talk to him, but he wont listen. i know the things that need to be done, but I cant make them happen. And the dr he did see never mentioned all the things he could do to help himself. So I just dont know what to do. |
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| As I have said we will no longer be living together as from tomorrow. I have tried for nearly two years to get my partner and my stepson to take on what the four doctors have told them both but they don't so the problem carries on and everyone else in the house has to suffer it. I am sorry if I am sounding unsympathetic but this problem is only solveable if my stepson and partner are willing to take the steps necessary to solve it; I can't do it all myself esp when I am not getting any involvement from either of them. I know this must be awful for my stepson and I have tried my best to help him with it but at 13 he knows and understands what is being said to him, what he does with that information is entirely his decision. I just hope my partner can be the parent that my stepson is crying out for; his mother neglected him and ignored this problem for years and did nothing about it, no wonder my stepson thinks it is `just the way he is`....is a very sad situation I have found myself in but I have to get out for my own sanity and that of my daughter's. |
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| Hi, yes you are right it is Encopresis (or sneaky poos ) My son (now 12) had this problem after between 5yrs to 10 yrs old. We had him under a pedritician (childrens doctor) who did a precedure on him. Quite simple, just drank a certain fluid (can't remember what the fluid was) and then this drained his poo completely out of his body. He then needed to re-train him how to contract and release his bottom muscles. If he did have an accident after the procedure we had to give him a home enema, just to release any poo that was stuck. My sons poo kept being trapped in his intestines. Eventually he did get better, as we also needed to keep him on some sort of fibre supplement (benefiber, metamucil). I was told by his doctor that if he starts having trouble again it will hit him with a lot of force and be will be worse than before. We he has now relappsed so i will be taking him back to the doctor. You must see that you stepson is seen by a doctor and treated. It must be very embarassing and upsetting for the poor fellas, as they too know that this is not normal. Good luck and please see it through for him. |
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| My partner's son came to live with us nearly two years ago and at first he hid his problem but gradually I began finding soiling all over the house and hidden in bins etc; I had no idea what it was, thought it was his laziness as he is pretty inaffected by anything. As time has gone by the problem has gotten worse, he is now 13, nearly 14 and it is as bad as ever. Eventually I did my own research and discovered encopresis and I am 100% convinced this is what my stepson has, he told me he has had this problem since a young age. I have tried everything, telling him to eat high fibre cereal, drink lots of water, take laxatives, use the toilet at appropriate times and not at 2am to eventually get rid of the backlog that has been sitting inside him for nearly two weeks, all to no avail - he just won't take any kind of responsibility for what his happening. It has got so bad neither myself or my grown up daughter can use the toilet without finding some remnant of soiling. On top of all that my partner burries his head in the sand and won't deal with it. He thinks it is enough to just give his son laxative and that is it, he is a very lazy parent and prefers to ignore the problem. I'm now at the stage where we are breaking up, not just over this but everything in general and his total apathy towards parenting his son who clearly has issues and definitely suffers from a need to have constant attention which he never got from his mother and is clearly not getting from his father. I've had to come to a decision to opt out of the whole step family scenario as I was the only person doing any work whilst my partner and his son just carried on regardless. They are now moving out to live on their own and I think it is the best decision for everyone as I can no longer continue to bang my head against a wall. He has a hospital appt soon but whether or not my partner actually takes on board what he has to do and the hard work involved is questionable. |
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| My Son is 5 1/2 and over the last year has gone from streaks in his underwear to soiling his pants, he sais his brain didn't tell him he had to go. Which I had a hard time beleiving because he was fully potty trained before. I started to beleive him as I could tell from his expression that he really didn't know. I've been so very frustrated and pushed to the end, going through a seperation with three kids is hard enough but adding this to the mix I want to pull my hair out.I friend suggested that he might have encopresis so I spent hours last night looking it up and this sounds exactly like what he has. I feel terible for not understanding before, he has 1-5 accidents a day at home and at school. very frustrating. The research I did last night gave me hope that this will go away with constant attention and compasionate work by all involved with my son. Although finding this forum today set me back most of you have been dealing with this for years and my heart goes out to you all, and I hope that I am catching this soon enought that it is fixable/managable and hopefully he will gain elasticity back in his intestines and the feeling/urge to go. I went to the web page you suggested www.soilingsolutions.com and honestly I would rather start off going this aggressive route that to spend months trying less aggressive ways. I know it seams terible and traumatic but isn't soiling your pant daily even worse? We were at a party the other weekend about 80 people were there and my son soiled on the water slide and didn't know it, extreamly embarrasing and traumatising to him and his sisters and myself, but mostly him he had no idea he did it. I think the best approach is the aggressive approach and when I take my son to the doctor today I am going to let them know this is what I am going to do. I feel horible for not understanding sooner and I see back his little face when he has public accidents and I feel I should have been comforting. Thank you all! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| As a mother whose 9 year old daughter has encopresis, I would want to know and for you to come to me first. However, I would also want the other children to tell my daughter how they are being impacted. And for them to be honest and direct with her, without teasing and ridicule of course. In fact, I have told my daughter's friends to politely tell my daughter if she has had an accident. Many times, my daughter doesn't even know herself and she needs to be prompted to do something about it. And there's times when I'm not with her. She's heard it a million times or more from me over the past 5 years and I think she often tunes me out. Her psychologist and psychiatrist told me to take a step back and allow her peers to do the influencing. My daughter is old enough now to understand and if she wants to fit in with her peers, she needs to take responsibility for her accidents. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I am a scouting director searching for help on how to deal with encopresis in our group. We have a small co-ed group of 3rd- and 4th-graders who get along nicely. One of the 4th-graders has encopresis and regularly has a strong odor. While the other children are good about not teasing him, they are coming to us and their parents with complaints of nausea from the smell and a lot of questions. As a parent of a child with encopresis, how would you want this situation handled? |
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| omg, I currently have a 13 yr old son that I am at wits end with on this. It is a bit disheartening to know that all of that didn't work as I am to the point of taking him to the doctor the second time and begging them to do something, but I believe he is like your daughter and won't stop until he decides to. I am going to increase the fiber and maybe give him a laxative every other day...I am just tired of the smell and the nasty boxers where here lately pieces actually occasionally fall out. I am so glad I am not alone! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I am caring for a nearly 8 year old girl with encopresis. She also has an intellectual disability. She seems happy to stand around in wet or soiled clothes, and has had little or no training on the potty. She doesn't seem to know which end is up if you know what I mean. Has anyone got a child with an intellectual problem as well? She is in my care for a short time, so we have changed schools and they are very supportive. We can go through up to 20 pairs of undies a day. Her previous school has brought in a policy of pull ups only during school time, or no school!! Has anyone had this before? How then, is she to train to go to the toilet? If I can keep her longer, that would be great, because this school is happy to take her to toilet every 30 mins. Though, the little one wouldn't go of her own accord. She is rewarded whether she is wet or dry, just to encourage her to go. what is the future for this little cherub? She is taking 2 movical (full strength) every day, and has been on movicol for about 4 years. Surely this can't be good for her system? As for clean out, I did one at the beginning of the year with full strength movicol. Her mother is not very supportive and at her wit's end. Flogging is the best way she copes with it. If you get my picture.... |
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| hi my son is 17 and he cant go to the bathroom unless i give him something to make him go he has been like this since he was little i have took him to doctors and they say he is not getting enough fiber i would just like to know what is wrong so we can try to fix his problem if you have any suggests please let me know thanks donna | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi "cindy", My daughter, now 9, was diagnosed with enco at age 4. We too have exausted every possible remedy. Even the professional's we gone to are stumped. She's seen a pediatrician, psychologist, child psychiatrist, chiropracter, message therapist and a play therapist. Talk about a strong willed child!!! My daughter takes the Miralax with lemonaide. She wouldn't take it with water either as it upset her stomach. But she says she doesn't even taste it when mixed with lemonaide. I hear your frustation! We have all the same questions but I keep reminding myself that it is a complete waste of my time and energy to attempt to figure any of it out. It's the most comlicated condition I know of. But at the same time it's not life-threatening, so I work hard each day to focus on my daughter's positive traits and to let go of trying to fix it. As my daughter gets older we too are giving her more responsibility to clean herself up, but it still hasn't been motivation enough for her to stop the soiling/wetting of her pants, consistently. She's good for days and then she's not. She says she "can't help it". I have faith that she'll either outgrow it or learn to deal with it without my help. As long as we keep teaching her to take responsibility so she can learn how to clean up, I trust that if the condition persists, I won't be wiping her bum when she's a teenager. And if she has an accident she will deal with it without anyone knowing. Or...the light bulb will go on for her and she will stop doing what she's doing long enough to poo/pee in the toilet and not in her pants. Hang in there. Take care of yourself and do what YOU need to do to stay sane. |
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| I have a 13 year old son with encopresies. We have been battling this since he was 5. He has taken miralax for years and we had good weeks and bad. Recently the dr. took him off miralax and has him taking 4 tblsp. of benefiber. Now he can't stop going to the bathroom. I am so frustrated that we can get normal here. He had a procedure recently which is where they showed him how to use his muscles properly and checked the sphincter muscle funtion. I would appreciate any advice you may have to offer. Thanks | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I have an 8yr old girl that has suffered from encoprese since she 3. He have tried everything - rewards, discipline, bribery, doctors and mirlax. She currently is on Miralax but she doesn't like to take it. Doctor says to put in water but she doesn't drink it. What do you suggest? Did did really good when she was going to the doctor every 2 weeks but it got costly. She is so stubborn. We have her clean her own poo underwear and it doesn't bother her at all. Why is not cooperating? This is effecting her social life and driving me crazy where I can't sleep at night. UGH. Any advise would help. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Amanda, I had to reply to your message as I have been where you are. Our child is now 9 and was diagonsed a young age (3). She did everything your 5 year is doing and we just didn't get it. As she is getting older we have made her more responsible for her problem such as cleaning her self up. Sometimes she has good weeks and sometimes bad. We to thought the problem would clear up after going to hospital at the age of 3 for a bowel washout. And here we are 6 years later still coping with the problem. My family doc has since told me that this will probably be a life long problem that she will have to learn to live with and manage! Please feel free to message me back as I have lots of experience and advice that I can offer you. Regards Bernie. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi I posted a while ago as I have a 15 yr old son with encopresis and need to talk to other parents of teenage boys with this condition. I have changed my user name as I didnt want anyone to be able to identify him, so may have caused confusion. At the moment he is taking movicol once a day when he bothers to, he is difficult to persuade to do things he doesnt want to, and doesnt want to attend the specialist as he is so embarassed. Is there anyone out there with similar problems who I can chat to? Thanks. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi...how old is your son? When was he diagnosed with encopresis and has your son had an xray? He might need a cleanout because if he's plugged with stool, he will continue to soil. He may not have any feeling to go poo if the colon is stretched. The only way he will regain the feeling is if the intestine is empty. I've discovered too that if my daughter has too much laxitive, she will soil. Some foods definetly are more constipating than others, but you'll have to monitor that with your son....because every child is different. You can always try pantiliners if your son will wear them. Might be worth a try. Hang in there and don't give up |
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| hi my son has soiling trouble he wont go to the toilet even when prompted he flat out refuses and he has "accidents" at least 2x a day usually between lunch and dinner. some days he has episodes all day. once called on the fact that he has pooed he refuses to go clean himself up and seems ok to sit in it...( which obviously i totally dont understand) his pead put him on actalax and benefibre combo and he is great in the morning its just after lunch. he wont use the toilets at school and it made him find it difficult to make and maintain friends...We are getting him assesed for aspergers. i was wondering if there is any such product like underwear liners for soiling that once soiled can be peeled off and thrown away givin the child a chance to get fresh at school or out shopping etc???? or any advice or tips on any miracle foods that might be good to try too? thanks kelley |
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| Hi all, We have a nearly 5 y/o who was diagnosed with Encopresis back in November. My H and I are both so frustrated and at times at our wits end. A couple of weeks ago he had a barium enema and x-ray to rule out Hirschsprungs disease, which was ruled out. At this point I feel like he knows when he has to poo , he just refuses to go in the potty. I try to be patient, but when he doesn't even cooperate for getting cleaned up or sitting on the potty (we aren't requiring that he poo there) I become infuriated. I just don't know what to do. Punishment doesn't work. Rewards don't work. It's like he doesn't care at all! I have to admit reading the posts have distressed me even more. I don't know if I can handle this for years on end. I was under the impression from what I have read that things should be better within a year. Well they aren't yet, and now I'm afraid to wonder when they might be. I'm trying to go back and read the old posts, but if anyone has any practical tips to get him to cooperate with either clean up, letting us know that he needs to be cleaned up, sitting on the potty, or pooing in the potty please let me know. Thanks, Amanda |
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| Hi Julie, I have a son aged 15 with encopresis and like you he has had it since he was a little boy. I didn't understand the condition for a long time, i thought he had control over it and I could help him with rewards and star charts etc, to stay clean. By the time I found out more about it, it was very embarassing for him to go to the dr, eventually my ex husband took him at the age of 14, and he was put on movicol. However here we are 8 months down the line and nothing has changed. He hasnt had an xray or been given a proper clear out, although I have asked the doctor about this but he said it wasnt necessary. We now have a new dr but my son wouldnt go to see him, I had to go alone and he has offered to refer him to a specialist but my son doesnt want to go! He is like your boy, stubborn and gets into trouble at school and can be very difficult at times. It is very difficult to get him to do things he doesnt want to do, except with bribery or withdrawal of privileges. I would love to keep in touch with you, I have been trying to talk to someone with a teenage boy for ages. He isnt really taking his medicine regularly at the moment, so is getting very constipated and things not going well. Do get back to me soon. Thanks Debbie. |
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| Hello, my daughter is 11 and I have been dealing with her encopresis since she was 9 mo. old. I had no clue what was going on back then so I cant imagine her pain. Well, I am going through a flair up right at this moment. My daughter paced the floor last night all but 2 hours. I know she's in pain and all I can do is give her miralax, exlax, and well just be patient. She has been hospitalized 1 time for this and she's so afraid of going again that she tries desperately to hide it. We know that's not possible. Well, I just needed to vent and I related most to your comment. thanks, a sleep deprived mother | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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