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| It is stunning to me since I first posted this topic how many parents there are out there that have this problem and are suffering like we are. It makes it a little easier to know that its nothing that your doing as a parent but something that is completely out of our control. And having patience is the biggest key to the problem and eventually there is a light at the end of the tunnel. Good luck to all of us on here!!!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I too just found this website. I can so relate to the frustration, saddness, powerless and hopelessness that other parents have expressed. My daughter is 7 and was diagnosed with encopresis at the age of 4. We went to a pediatrician for a while and she is now seeing a psychiatrist who specializes in encopresis. Last February is ended up in the hospital for a cleanout. A procedure that is to take 2 days ended up taking 4 due to a very strong willed child refusing to be cleaned out. Since then she has consistently on Lactulose and Senokot in order to keep her stool soft and bowels cleaned out. She continues to soil herself and hold her stool. What we have come to learn is that when she has no panties on, she goes to the toilet on her own, and doesn't hold it. But as soon as the panties are on, she holds it. Most of the summer we allowed her wear long skirts and have no panties, hence she went more often to the toilet on her own. She is in grade 2 and since school has started again, she has consistenly soiled herself. When she comes home from school and takes her panties off, she eventually has a bowel movement on the toilet. I've come to believe that I have a very strong willed child who is very resistent to potty training and has been since the age of 3, when it all began. I came accross an article on the web www.rogerknapp.com/medica l/pottytrainingrefusals.h tm After I showed it to my husband, we decided we might give some of the suggestiong a try. I thought I'd post it for others to review. I'd love to know what others think. We've also been referred to a psychologist who deals with children with encopresis and see if that helps at all. I read a few postings that have given me hope when I read that eventually their child has outgrown the resistant behaviour to toileting. It's nice to know that I am not alone and appreciate reading other's stories. |
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| hi, i wrote a few posts ago.she is 11,and as i wrote in my previous post she has had encopresis for about 2 years now.(nothing has worked for her to date)about 2 months ago we were back at the hospital again for a clean out.she promised me (again) that this time she would not let it happen again. i sat her down and spoke to her heart to heart and she told me that she has control over what she is doing,but just cant help herself.i spose the only way to explain it is like when some-one has anorxia,they have something to eat then go to the bathroom and make them selves be sick.well in her case if she gets worried about something or stresses in any way she actually soils herself.she can control how much she does etc. she told me she would stop,but so far it is still the same.her pants are still soiled.i bought her pads to wear,but now she is just transferring the problem to the pads,as she knows she can just go and get another one etc,etc.next year is high school and i have told her that people will notice the smell,as when she does it ,it stinks.she is on a mild anti depressant prescribed by the dr,and i have noticed a big change in her, but it hasnt helped her problem........ | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hello just found this site and relived I'm not alone and saddened that so many of us live with this and the help in sorting it out is really not there.My first child who is now 9 did have this diognosed when he was about 4 and at the time I was shocked that it really was something and not laziness anyway that all turned out well as I spent the next 3 weeks re tiolet training him and he just got it and never had a accident again ever but it was almost a year say from 3-4 that we battled this,then I had my next boy and yes he is 6 now and exactly the same condition but much worse we have noticed over last 2 years getting worse as he does just not care,hard to deal with the guilt that we have been unlucky having 2 boys having same thing but seems no solution or quick fix like my first child do the doctors,medicine,xrays,hi gh fibre diets,plenty of water etc etc,causes lots of friction betwen myself and hubby,as I know he just does not make the connection with bowel telling brain that it is time sometimes I get fed up and enough is enough but no matter what I have tried with 2nd child nothing seems to change.He is in grade one and I worry every day,but he seems to have a incredible ability to hang on till he gets home,but to see his stomach so swollen as he compacts it for days and fights enemas but I still persist anyway don't have any answers but was saddened by finding all these posts it makes me cry,such a struggle for all these families and all these poor kids that suffer this,and not to mention scared that who knows how long this will go on for. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Something else you might want to try is the complete removal of all dairy products from your child's diet. The research coming out of Italy in this area is quite impressive. Apparently they have a 60% improvement rate with kids who do this and it is becoming standard practice. We are just about to start this process but its worthwhile checking with a dietician because there's heaps of hidden milk protein eg. sausages and some breads. I'll let you know if it works. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I'm not sure if all these messages make me feel better or worse! It's good to hear we aren't the only ones going through this, but the news that some of the kids are going through this until they are 10 or older.... We've been toilet training for 18 months now - I have a 4 1/2 year old son who soils anywhere from 1 to 8 times a day (and not just little skiddies - full on efforts mostly). He is smart at stubbon (sounds familiar). We have now clocked up 3 paediatricians, a continence nurse and now a psychologist - with no success, but at significant cost. He has been chucked out of the early learning centre we waited so long to get into, and probably won't get back in now. I don't know what to do, as all the kinders and ELCs I speak to will not take a child who soils constantly, Unlike some of you, we can't get through a day at kinder without accidents. I hate to think what will happen when he has to start school in 2009. Can you tell me what the silica is supposed to do? Does it treat constipation? This does not appear to be our problem - he is a prodigious pooer. I have also been advised to see a chiropracter - has anyone tried this? |
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| Hi All, I also thought we were alone with this and many of the posts could be describing our 41/2 yr old daughter. This has been going on for about a year and what worked for us is a visit to the homeopath. I was a bit hesitant to write this as it may seem too simple or alternative but it really worked for us. The homeopath had been recommended to us and she took a comprehensive history (diet, behaviour, medical history etc) and them gave her a remedy called silica which we have to give her once a week. it took about three weeks for it to work but then it pretty much cured her. When i ran out after a few months and didn't get more the enco came back. She's back on the silica again. Obviously this is not for everyone but i did want to share our experience in the hope that it may be at least considered by others. It was a very difficult time for us. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| In relation to school age kids, we've recently had a breakthrough that you might want to try. I organised with the class teacher that I would drop into school at the begining of either morning tea or lunch and take him home. We did a quick change, powder, shower whtever was necessary and try really hard to go to the toilet. We had some really good success over about two weeks and now I have weaned him back to a visit once a week later in the week when we have noticed problems are more likely. Another idea for school days has been to use sanitary pads to line the undies. This really helps him to avoid having to change undies at school and doesn't seem to bother him at all. By the way, the powder really helps with the smell!! (we have a plastic bag which he keeps in his pocket so the other kids are none the wiser). | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hi there, I am going through exactly the same thing with my 9 yr old boy. He would constantly hide dirty undies in his room,very frustrating! As soon as I realised he had enc, I made sure to tell him I knew it wasn't his fault and that if he was dirty to tell me and he would not be in trouble. I told him constantly that he would not get in trouble for dirtying his undies, only for hiding them! We are slowly getting him to stop hiding them and to be able to clean up after himself also which I think is a big step to fixing the problem! Good luck . I hope this helps you, I know how frustrating it all is!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hello everyone. i have had a quick glance at your posts regarding encopresis and couldnt believe i found a site that was going thru the same as me. my daughter 11 has had this now for about 2 years and its not getting better but worst.she is now going thru puberty which is making it even more worse.she is constantly soiling herself.she knows its wrong but is in denial.its so embarrassing,i am at my wits end.she starts high school next year,which i am dreading.we have been to dr's,she has a ped dr,is on movical,has had numerous wash outs but to no avail.she says i will stop this mum,but she also lies so much about it and is very sneaky,hiding her underwear all around her bedroom. is anyone else having this problem. this all started when my ex husband and i separated and divorced.she is also on a mild childrens anti-depressant. any suggestions............. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My son is now nearly 12 and between the ages of 2 and perhaps 9 I had the same problem. Now having read all of these postings I now realise he probably had encopresis. He would just hold on to his bowel motion then eventually soil himself. He would never tell me I'd just end up smelling him. His older siblings would tease him. I tried giving him more fibre in his diet, told him to go straight to the toilet as soon as he felt the urge, tried not to get too upset when I had to change yet another soiled pair of pants, tried rewarding him for going to the toilet etc etc. I think he just realised eventually that he stunk and people didn't like to sit next to him. I have 4 other toilet trained kids between 15 and 5 and had no problems with them at all. He also sometimes wet himself. Anyway thank god he now is okay. Don't blame yourselves, I know it can be quite degrading showing up to school to change your soiled child. |
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| Hi montdes 1, I wanted to reply to your message as my son is also 10 and has just been diagnosed as enco. For all the others out there we went to 3 GPS, a family counsellor, a child psych and 1 Paediatrician. I had given up but my ex husb took my son to another Paediatrician thus we came to the diagnosis of encopresis. Just wondered when you where in control of the problem what where you doing? Amanda |
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| Hey Tony and Rachel this ped is in the Dandenong area if this is any help to you his name is Dr Thomas Lee l feel a little werid putting his number on the boards but if you like you can email me narregirl@yahoo.com.au will help you anyway l can... | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi narregirl, My name is Tony. I live in Melbourne and I have a daughter suffering from encopresis. we are looking for a ped who is really understanding in this area. could you please tell us the name of the ped you were referring to. Thankyou so much, Tony and Rachel. |
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| It seems to make very little difference whether you go public or private in QLD. Mostly you will be seen by registrars anyway! Even if you get admitted to hospital you have a high chance of seeing a different specialist than you expect due to rosters etc. Mostly we've found that going private only gives you a chance of a private room and my little boy has actually enjoyed being around other kids and has had quite a positive experience. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hey There. My son is under Dr Gollows at PMH and I think he has seen him once for about 3mins. The rest of the time its someone else. Go figure. We were private | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Do you go to PMH or private, My son is ment to be under Dr Mews (At PMH) but always get seen by registras, We are thinking of going private so any help will be good. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hang in there honey!!!! It's really hard as your kids get older and it seems like everyone else has been able to overcome this problem - believe me I know! You are certainly not alone. We have recently spent 3 days in hospital getting my son's bowel washed out after years of Movicol, Parachox, Senakot etc. The procedure was a lot easier than I expected and seems to have helped although not cured. My advice is to get referred to a Paed Gastro (generally in Public hospitals) - it took us a while to get in but we were in hospital within days. Good Luck!!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| After 10 long years with my son at last I see I am not alone. Doctors have not helped me at all and I have been left to cope with the shame and the upset for all of the family. I feel guilt and so much sadness, I have tried so many things but just when I think everything is sorted and my son says "please dont worry mum I'm ok now", it all begins again when there is a little change in the normal routine. I panic when he stays at a friends overnight or when he goes on school camp. Other mothers sympathise but dont really understand. I keep thinking this can't go on much longer but he is 10 next week and I wonder if i will be still cleaning up after him when he is 16. He is the kindest sweetest boy but i wish things could be different, maybe is should go back to the doctor and ask for help again. He gets so upset when I suggest this so maybe I should go without him? We have done the diet thing and regualar toilet times but as soon as we try to let him do it alone it goes back to square one again. I'm at my wits end but trying to stay calm and understanding too. Not sure what I hope to gain from typing this but it's just nice to let it all spill out instead of pretending its all ok. |
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| My 7yr old boy has finally passed his compaction, after 4 weeks of not going to the toilet at all and after one week of intensive treatments recommended by his fantastic paediatrician in Sydney. We finally moved the compaction with the aide of MOVICOL. This is available over the counter as well as on prescription. The dosage was 8 sachets a day. I know this sounds extreme and your Doctor might recommend a different dose depending on the severity of your childs problem. We needed three days at this dosage before we saw any results though, and then as a follow up for the next three days we had one satchet per day. It took four days to evacuate the bowel and aside from not liking the taste of the concoction and some mild tummy cramping there were no side effects. This is the second time we have had to resort to this seemingly extreme measure but the results were great and were relatively painless and safe. Now we can start the long process of trying to train the bowel and the 7yr old to recognise 'the feeling' of needing to go to the toilet. Once the bowel has been stretched to this point there is minimal muscle control and you will need to keep ontop of the problem with daily stool softeners and mild laxatives. We are attempting a strict meal program to try to 'time' when the bowel needs to empty, obviously it isn't a good time after lunch when children are playing and are at school. I know its difficult but try not to punnish children for soiling in their underwear as it is in most severe cases of encopresis and stool comapction out of their control. It took me a long time to realise that the nerves and muscles of the bowel didn't always work in unison and often caused leakage. This leakage is softer feacal matter moving around the compacted stool, a small child and even a 7yr old has trouble differing between this insignificant movement and the passing of wind. I hope this can help some of you stressed-out mums. |
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| hey that's great and a big step in the right direction.. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| yay we had a breakthrough, bailey did a little poo on the potty last night its so exciting he had to ring his nan and tell her, i used some bribery but hey whatever works i got together a bag of little pressies from the cheap shop just stickers, colouring book and textas and he new if he tryed to do it on the potty and not in his pants he got to pick something out of the bag, funny how going to the loo is something thats so normal for most kids to learn but when bai did it i almost brang out the marching band for him | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hey There. If your living in Perth it is almost impossible to get a referral to se a Paed Gastroenterologist. There is one here and she is not taking on any new cases! We got a referal to a surgical specialist to bypass the wait then got him to refer us to a Clinical psychologist who specialises in Encopresis. She helped tremendously and we have made great strides, but still have slip ups every now and then. I think though that the solution is vigilance and to try to stay on top of things and to just go back to basics! Good luck all!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Thanks for the heads up! I'm absolutely dreading this as we've been warned that this is probably just the prelude to a colonoscopy and biopsies. For all of you with 4 year olds and under - it does get easier to manage as your child gets older. They seem to have longer periods between accidents and are able to change themselves fairly efficiently. We have actually gone for a whole term (10 weeks) with no accidents. Unfortunatley this did not last and we are soldiering on. |
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| Finding the right Paed is really important and you sound really frazzzled. I have found a useful one in Brisbane and could also suggest one for Perth. See if you can get referred straight to a Paed Gastro, we've managed to cut through a lot of heartache by doing this. Don't forget there will be a lot of ups and downs. I'd try to start a routine of sitting on the toilet (even if no success) and read books, play games, sing songs whatever it takes and pray for a breakthrough while you wait!!!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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