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| Just in reply to soxsoxy, I have found that my son doesn't soil once his bowel has been evactuated. The bowel must be fully empty to get anywhere. We try something new everytime the bowel has been evacuated with movicol. Last time it was a natural laxative (didn't work) this time its movicol every day and we do not get any soiling. If he has the Movicol drink in the morning he is on the toilet in the afternoon almost at the same time. It will work only if the bowel is empty. I have finally realised that you cannnot train the bowel if it isn't completely empty and everytime we have some success it has been when we started from scratch. So if your daughter is leaking maybe evacuate then start a new program. Metamucil is a fibre supplement which you might want to try if you are still having soiling prblems from having too much stool softener (like parachoc). And it is in a capsule which is sometimes better than the drink, although the drink isn't so bad if you make it into an ice-block. I hope this can help. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Everyone, My 7yr old boy has been suffering with encopresis for over 4 years now and finally we seem to be getting somewhere. After his last compaction at the end of the school year we evacuated with movicol. He seemed to lose alot of weight as well as he wasn't eating as usual. I thought I would give the dairy free diet a go also. So, knowing that he wasn't getting the right amounts of vitamins and minerals from his diet we started supplementing with a multi vitamin, caltrate and also 'Inner Health Plus'. He is still taking one Movicol sachet per day and we are doing large sized stools on the toilet every day!!! yay! (only for the last two weeks though) His diet has improved but we are keeping up with the supplements as the encopresis has really impacted his overall health. If you can't get your kids to have a Yukult the Inner Health Plus is great also. If your little one is still only a 'little one' you might want to try Movicol-Half. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Thanks for the info on reflexology, Soxsoxy. Some very intersting findings, even though it was only a small sample. We may give that a go if our current treatment has no success. If anyone has tried a chiropractor, with or without success, I'd be interested to read about your experience. In the meantime, good luck everyone. Cheers, Lolgirl. |
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| I found an article on the internet re: "Reflexology Eases Encopresis and Chronic Constipation" "Reflexology in the management of encopresis and chronic constipation" was conducted by Eileen Bishop, Evelyn McKinnon, Evelyn Weir and Denise Brown of Ayrshire and Arran Acute Hospitals Trust in the United Kingdom. According to the study done "The results show that soiling episodes reduce significantly," as a result of reflexology treatment. And "The frequency of bowel motions has also significanly increased" as a result of relexology. I haven't tried it myself, but it's "food for thought". |
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| Hi, It's so good to see that other people are dealing with this also. My son is 4-1/2 & last week was sent for a x-ray and it showed a large stool in there. He said he is pretty stretched out. He has been leaking for months didn't know what the deal was until now. He has been on mirlax for 7mo and has been on a double dose of it the last few days to try to flush him out. He is having some everyday but not tons like I expected. Suppose to call the Dr. back next wed. and give update and probably get another x-ray to see how it looks. He is very strong willed and wants nothing to do with the potty. He has had some very painful bowel movements and is scared of the potty I think. Will the big does of miralax do the job? If not what will they do next and what to expect after that? Thanks so much Rebekah |
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| Hello everyone, Our daughter is four and a half years old and has recently developed encopresis. We are currently trying to learn as much as we can about this condition, and this message board has been particularly helpful - thanks to all those who have contributed! One question though - has anyone sought help from a chiropractor or acupuncturist or similar, and if so, how did it all turn out? Hope someone can give us some further direction. Good luck to everyone living with this problem - it seems like we could be in for a long battle! Cheers, Lolgirl. |
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| Just wondering if anyone has ever tried hypnosis by a professional to deal with encopresis? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hope you all had a happy New Year! I took my boy to the Specialist the other day and it seems that because he has a weak bowel he also has no reflexes in his legs! I thought that was odd. The Paedatrician was really good and he's in Dandenong. My boy is still going well doing poo everyday sometimes twice after giving him YAKULT every morning. He actually now knows when he needs to go which is fantastic too. I just put him on twice a day especially after breakfast each morning and sometimes at night he will sit himself on the toilet. He is nearly 4 so hopefully this is over. He actually says he doesnt want blocked bowels as it hurts his stomach. We explained to him what happens and he understands it all which is important. I hope the rest of you that are dealing with encopresis in your children are doing well. I would like to hear back from some of you as I check on here quite often to read updates. My original posting was CalifornicationMoody just so you can read the bit of history on my son. Regards The Aspiring Writer |
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| My apologies as it is the first time I have participated in a message board and I relaise that I have not indicated whose message I was responding to. So if you are still reading messages "jenk38" I would love to hear from you. Happy new year all | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi I also live in melb and have a child with encopresis and you email gave me hope. Like your daughter my son was diagnosed at 4 and 6 years on we are still dealing with accidents. Over the years we have been to a variety of health professionals including dr cuttings continence clinic and prof hutson at the royal childrens, we have followed behavoural charts, laxatives, senokot, extra fibre, more water and even sessions with child psycholists. Over the years we have seen progess but it is very slow. Each time we think maybe this time we have it beat and then we slip backwards. He could go several days without an accident and then have one every day for a week. Like you my biggest problem is getting my son to take responsibility. I always ensure that he has a change where ever he goes - but the battle is for him to change straight away. I have lost count of the number of promises he has made that he will change next time, that next time he will go to the toilet as soon as he feels the sensation or has wind. I know that we should never be cross or angry about the accidents (but it can be hard) what we do take to task is his failure to deal with them. My other half is pushing for the answer in diet, but my son is strong willed and stubborn (also tends to be overly emotional) and I have begun to think that our solution relies on what he can do for himself by taking ownership of the situation rather than the nagging from us. Is this what happened to your daughter - can I put my hope in the faith that one day he will wake up and say with conviction that it will stop. My son will be 11 this year - how do I get him to take this next step. |
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| UPDATE PLEASE READ - MAY HELP YOU ALL My boy has been going really well the Movical was helping but the problem came back. I have since put him on a daily dose of YAKULT and guess what he has had no leakage since taking Yakult every morning and has been going to the toilet almost everyday he has been on YAKULT for about two weeks now and so far so good. PLEASE TRY YAKULT FOR YOUR CHILDREN!Dont try the cheaper versions it must be Yakult as the bacteria actually gets to the intestines and helps clear out the bowel. Let me know how you go it has been god sent for me. He is still going to the Specialist on Friday as I want to hear what the Specialist has to say and for my boy to have tests done if need be. YOu can actually buy MOVICAL without prescription at any pharmacy. |
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| Hi there I have a son who is nearly 16 & still has this problem. How do you change a situation that a child refuses to acknowledge? We are at our wits end & despite years of positive reinforcement, behaviour modification, bowel wash outs, constant visits to the Peadiatritian, etc we feel that we are no closer to the end than we were 15 years ago. We can sympathise with these children & their families as we can see and feel the pain, but what will it take to change what we now regard as a really bad habit. We are interested to hear of any alternative ideas that have been successful. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I have posted on here several times, but now there is a new twist in my son's progress. He is 6 years old and has been dealing with encopresis for about 2.5 years now. He was just recently diagnosed with Asperger's Syndrome, which is a highly functioning type of autism. This might be the reason why he has encopresis. 1 in 150 children are diagnosed with an autism spectrum disorder, so check it out. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hi my son is 4 and he has had encopresis for 10 months. we went through so many different treatments like parachoc, duphalac, enemas, suppositories, with no affect at all. then a paediatrician put us on a laxative called movicol, which you can only get by prescription, and it work wonders. it doesnt taste good at all, but if you can find some way of diguising it, i highly reccommend it. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi, I know what everyone here is going through my little boy is just under 4 and was fully toilet trained and now has encopresis. It is so hard and frustrating I have another toddler and am due to have another baby in the New Year. He is experiencing severe stomach pain and doesn't eat much now his bowel is impacted. He says he is full all the time. We are due to see a Specialist in Dandenong early Jan. We have tried Movical once it did flush him out Doc suggested one a day but it has since come back. So I am taking him back to the Doc's tomorrow. He had always suffered from constipation as a baby but then his stools softened and up until 6mths ago everything was okay - then the problems of soiling occured and the poo dark, clay like and very smelly. I just hope all of us on here with children that are dealing with this find some comfort in knowing that something can be done to address this complaint our children suffer with. I will let you know how I go with everything along the way. |
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| Thanks Snookums. We have been seeing a Dr. for 3 years now. When my daughter was 4 she went to a Pediatrian for 1.5 yr and then was referred to a Psychiatrist (majoring in Encopresis) for the past 1.5 years attempting to re-train the bowels. I've been keeping track of her toileting/food intake for about 1.5 years now. My daughter has been on stool softeners and a laxitive for 3 years. The most frustrating part is that the professionals don't have an exact remedy for Encopresis. I've thought about seeing if I could find a Gastroenterologist, but I don't think anyone really has the exact answer. My daughter and I are seeing a Psychologist to address the emotional/behavioural issues as well. My daughter's condition has improved slowly, and I had hoped that by now her bowels would be retrained, but like I said, "I guess my expectations are too high". It obviously takes much longer than I had originally thought. I do believe that a dairy-free diet helps. I also don't believe that it's totally realistic for my daughter. I do limit the amount of dairy that she eats, but I want her to get a healthy amount of natural sources of calcium. I'm a believer in a moderate amount of all the food groups is healthy. I also have difficulty figuing out if her soiling is from constipation or from too much stool softener. Each time she goes to the Dr., I am reassured that my daugher is not constipated. I struggle though with giving her enough stool softener so that she eliminates herself but not too much so that it runs right through her. It's a continuous guessing game. |
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| I wonder if my expectations are too high for my daughter. I feel hopeful when she has a bowel movement for 4-5 days in a row so when she soils I don't stop to think that it may be because she doesn't have the sensation. And each time my daughter has a bowel movement lately she says it doesn't hurt. So, again I assume that she has no reason to hold it. I'm slowly coming to the realization that there is really no explanation and that I've been driving myself insane trying to figure out why she continues to soil. I just keep hoping that miraculously the soiling will disappear and she will consistently go to the toilet on her own. ( In Reponse) As there bowels continue to fill the bowel gets hardened and full after a period of time they loose sensation , the only way to help fix this is a doctor ..laxatives and re-training of the bowel . I swear by dairy free diet. There is no quick fix sadly. Dont give up .... this can be cured with alot of patiences and trial and error. Start charting her diet and toilet activties, do it as it is for a few weeks. Then take it to a Doctor or even a dietcian and see how you go from there. |
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| excuse my spelling mistakes in last post , I didnt do a review before i posted lol . The other thing I was told that a child should do a poo every 3 days ... anything over that is not normal. |
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| My son jackson that I posted on here about a few months is going leaps and bounds. Diet has played a huige part in his re-training the bowel. We are now Dairy free also additives etc. Jackson goes to the toilet 3 times a day. Morning-noon-before bed. Jackson has to sit there for 10 mins. He takes games books or toys with him. There is not a day with this treatmentplan that he hasnt done somthing. We also treat him with a movicol sachet everynight this helps aswell , we try to give him a rest from the Movicol so that he just doesnt rely on that. Over the last few weeks we have noticed a few " accidents" but nothing like it used to be , we notice accidents more if a toilet time is missed. The good news is we have noticed that he has been to the toilet alot now of his own back and comes out of the toilet a very happy young man , telling all what his just passed lol. My advice would be is stick it out , we also have to train ourselves with this condtion. We have to sit with them in the toilet chat with them .. when you yourself goes to the toilet make it a big thing to the child. They need to know that its ok ... My lil man tells everybody that is brain and his bowels dont work together properly he accepts his condtion and with all the changes his had to make and us w have seen a huge change. Admit to Docs etc how you feel and how it affects the family. Help is out there! |
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| Has anyone every hear of thos? http://www.soilingsolutions.com/ We were thinking about trying this with my 6 year old. |
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| We can sometimes go up to 4 or 5 days without any BM. I would love for him to go 3 or 4 days in a row. I guess you do have to take the positives and concentrate on those!! I get a little lost in the battle sometimes and lose sight of the little wins along the way!! |
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| Thanks again for your feedback. I wonder if my expectations are too high for my daughter. I feel hopeful when she has a bowel movement for 4-5 days in a row so when she soils I don't stop to think that it may be because she doesn't have the sensation. And each time my daughter has a bowel movement lately she says it doesn't hurt. So, again I assume that she has no reason to hold it. I'm slowly coming to the realization that there is really no explanation and that I've been driving myself insane trying to figure out why she continues to soil. I just keep hoping that miraculously the soiling will disappear and she will consistently go to the toilet on her own. |
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| We do have occasions where my 7yr old boy soils his pants when he is regularly on the toilet (although according to our star chart it has been 5 days since his last movement). You have to remember that because the bowel is so stretched they have very little muscle control, which causes leakage. If you can maintain regular movements for an extended period of time the muscles controlling the bowel movements should start to strengthen and you will see a decrease in the frequency of leakage problems. This (I have estimated) will take between 2 and 12 months to obtain. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Yes soxy he is seeing a psychologist. She has been a tremendous help. Along with his encopresis he has phobia issues around the toilet and that he is scared that is will hurt. He had an anal fissure and this is how our encopresis started. The relapse is with the phobia, which triggers off his soiling and hence the bowle stretches and we are back to square one. It does make a huge difference to take a step back withe the power struggle, as the kids will always win anyway!! Stubborn little buggers. Anyway, forward ho and I wish you lots of luck!! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Thanks for your response. It's nice to know I'm not alone. My daughter had an appointment with her Dr. today and she believes that the soiling continues to be a result of my daughter not having complete sensation to go to the washroom. Her recommendation was to increase the amount of daily stool softener. I only give my daughter the laxative on the days she does not have a bowel movement... which has been approx. twice/week over the past few months. Is your son seeing a psychologist to address the behavior? I have been going to a psychologist with my daughter to get support to address my daugher's resistence around going to the toilet. It's been helpful for me to take a step back, stay calm and not engage in a power struggle with my daughter so much. As a result, my daughter has been less resistent to sitting on the toilet regularly. Does your son go to the toilet on his own? or do you need to prompt him? My daugher only goes to the toilet when she has a bare bum. So if she has pants on, which is most of the time, and needs to have a bowel movement, she often soils her pants. Yet, if she has no pants on at home she will go to the toilet on her own. As bewildering as it is, I don't lose too much sleep anymore trying to figure it out....it's out of my control. I appreciate having this group to talk to. It's a great support! |
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