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| Hi again IREADLABELS, So both your children are fructose intolerant? I am so disappointed as I think my 3yr old is beginning to show signs of encopresis now .... it is so hard as I have my 4yr old with encopresis who leaks all the time even after doing a BM on the toilet and a 11wk old baby and now my 3yr old. God I hope these tests work and I wonder if my 4yr old is tested and he is intolerant to something whether my 3yr old will be intolerant to the exact same thing. It is so weird that after all this time they show the symptoms of leakage/constipation now. Time will tell......... |
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| Hi Naring, I don't know if you've ever given your son an enema, but we have found it extremely traumatic. I think you would get the same result with movicol and surely it would be less invasive. I don't know what the minimum age is for CI or if it is recommended if impaction is involved. You should get a test result by mail within about a week of the tests. It will be either neg, borderline or positive. You can also enquire (on the day) if your son can watch the "breath" being tested. Although at your son's age they may use a hand held automatic tester as opposed to the "bags". The staff aren't allowed to comment on your test results but to give you an idea, my daughter's results for fructose were: 4,6,22,32,44 and my son 2,5,9,13,18. These are the Hydrogen parts per million over 2+ Hours. So each time your son blows into the bag/device a number will be recorded. If the numbers aren't increasing, it's pretty likely it will be negative. (This is all based on my own experience - not medical knowledge) | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| We have also made an appointment at boxhill to have both tests (fructose and lactose) and a session with the dietician, unfortuntately, athough we can get the breath tests done in a couple of weeks, the dietician cannot see us until July. So it will be a while before we know it this is relevant to our son. I think it may also be time for a "complete cleanout again" - but I was wondering if a colonic irrigation would be more "civilised" for my 10 year old. I am very much tempted to go an have one myself to see how well it works (as you can apparently see what gets washed our!!!!iccky- but then I think I have seen more poo than I care to admit over the last 10 years) Has anyone had one themselves, or considered for their own children. I would not consider it if he was little, but at ten ... and he could see that affect of cleaning out without the side effects of other methods... I would appreciate any comments. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| IREADLABELS, Thanks for the advice I will be going to the one in Campberwell as apparently where I live it's easier to get to. I am having all the tests done the four to make sure. They are $65 each or if you have concession $50 but it is well worth it hopefully as the amount it costs in training pants and movical half. If anyone needs MOVICAL HALF it is cheaper at The Chemist Warehouse $12.99 a box instead of $17.99 at the chemist A huge savings $5 a box. I will let everyone know how I go for sure. |
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| A paediatric gastro specialist told me that parachoc only lubricates the outside of the poo. ie it doesn't mix in to make it softer. Lactulose does mix in but he said they now use movicol instead. (don't know why) polarbear - my kids did the same thing with saying they had done a poo. Isn't it amazing how they all come up with the same techniques. My daughter also used to put paper in the toilet so that I couldn't see any evidence. I would be doing a flush now. You only have to do it until they're having diorrhea - the number of days being dependent on how bad the mass is. Then I would use movicol to maintain. But always consult your doctor! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Yes, having a Dr.'s supervison is very important. Even though they don't have any specific answers, I think it's necessary. When my daughter was impacted quite badly, I had her Dr. admit her to the hospital to have her cleaned out...completely. I could not have done it by myself. My daughter was in the hospital for 4 days. As mentioned, I was also told by the Dr. that enemas and suppositories only empty the lower portion of the bowel. For the past 18 months, since my daughter was in the hospital, if she doesn't have a bowel movement every 24 hours, I give her Senokot as prescribed by her Dr. I want the stool OUT! The Senokot works every time. She is also on Lactulose (also recommended by her Dr.), daily to keep her stool soft. Most days she has a bowel movement. This message board has been helpful for me too. I read it everyday. |
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| oh and another question if I may...I used Movicol back in February (Well my son did) after not having a BM for ovr a week. At the moment he is taking 50 mls of parachoc each night and the most he goes without a BM would be 3 days... At what point is the complete "clean out"warranted with Movicol? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hello again...have been reading some more posts...I was wondering - my 6yo sometimes tells me he has done a poo and has wiped himself and flushed the toilet...should I believe him? I act like I do because I want to believe him. His dad has an anxiety condition which leads him to not tell the truth about certain things for fear of retribution - I am a little concerned that my little bloke may be doing the same thing about his BM's. Most days I am able to check the evidence...just wondering what you all think? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Oh my goodness Orrmarie. You definitely need to find a caring doctor that you can monitor the children over a long period of time. In the meantime I would definitely recommend movicol-half sachets as opposed to lactulose (strictly my non-medical opinion) Adults use movicol but you would need to check with the pharmacist for these children which would be best. Inside the box it will tell you how many sachets you will need to use depending on the age. Actually, I've just looked at the box and it says movicol-half for up to 11 year olds. For faecal impaction which sounds like these kids day 1 would be 4 sachets, day 2, 6 sachets and so on. I mix the sachets with a cup of water and a heaped teaspoon of staminade powder (tastes yuk otherwise) If possible keep the kids at home from school for the week (or especially by day 3) as they will start having diorrhea - you need to keep going for the day after they have the first diorrhea then maintain on probably 2 sachets per day to keep everything soft and moving. These kids would have so much stretching and nerve damage done that you will need to keep on this regime for maybe 12 months! Again please see a doctor for supervision. You will also need to repeat the first "flush-out" if any sign of a build up re-occurs. A specialist told me that enemas only remove the faeces that is in the rectum ie doesn't do anything about the bits higher up. The kids probably should have an xray too to determine the extent of the impaction. You can also use cordial to make the drink taste better - just don't use red cordial as this is a known cause of constipation. Please please get help. The emergency room will only treat the symptoms not get down to the ongoing cause. Maybe as these kids are older than some of the other cases on this forum they would like to read other peoples stories to reinforce that they are not alone. Also even when things start moving it doesn't mean that they will not have accidents. Takes time for the "feeling" to retr ... | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I am currently "struggling" with my 14 yr. old niece's encopresis. She moved next door to me last year along with her 11 yr. old brother and their dad. The mother is a "come-and-go" mom and mostly out of the picture. I have always been very close to this niece and nephew (he also has encopresis). They have both had this condition since they were very small. Both had extremely bad constipation as infants and small children. My niece seems to have a terror of having a bowel movement. After seeing what she passes I am not surprised. I try to gently remind her to take her medicine (lactulose) and drink plenty of water and use the bathroom as discreetly as I can without "harrassing" her, but she is, naturally, defensive about it. The last time she had a terrible episode (huge poop, accident in floor, etc.)after an enema she begged me to "please don't ever let me go that long again!", but when I remind her how much worse it is when she waits, she denies that she has waited that long. Right now, it has been 3 weeks since she had a real bowel movement, but she refuses to use an enema. I know we will wind up BACK at the emergency room (where they will make her drink citrate and give her an enema) when we can do the same thing to treat her at home. I do not know how to help her anymore, but when she gets sick she expects me to do something to help her (usually it is the very thing she has resisted for so long that we have to resort to--an ENEMA!!). What are the physical effects of this long-term holding of feces? Isn't it dangerous to allow it to build up for so long? Why the resistance to an enema when it will only get worse if she keeps waiting?!! Her brother tells me that he has BM's every day (which is not true, except for the small ones he has in his pants) so I do not know how to deal with his problem since he doesn't spend as much time at my home as his sister does. After dealing with his sister, I do not know that there is a "correct" way to deal with it. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hello everyone, I'm feeling quite frustrated at the moment. Our Woolies hasn't had any gluten free flour for 4 months and now no bread for 3 weeks. Meantime they stack the ends of the shelves with ceiling high piles of cordial and soft drink "specials". I've done an internet order but as I live so remotely it takes about 3 weeks to get here. Hopefully next Tuesday. There is an IGA here that sells the bread for $9/loaf. Staggering. I've got a little bit of SR Flour left so I think I'll make some cheesy muffins and that can be their "bread". I'm so glad you're going to try the Breath Test "aspiringwriter". Won't it be interesting to see what the results are. Might be the start of a revolution! Are you just going to do the fructose test or the glucose and lactose too? I wish I'd done the test myself to see if there is some sort of history. BTW there is a huge park across the road from Box Hill. I took along chilled boiled eggs and rice crackers to snack on after the test. Also there are only a few chairs inside the test room so make sure you snag one of the soft lounge type ones in the corridor outside. You'll be there for about 3 hours so take colouring stuff/portable dvd player if you have one. Absolutely nothing else to do apart from sit there so be prepared. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| BabyPolarBear & all It is comforting to know that we aren't alone. My boy has had this problem for almost 0ne year on and off. It is hard because everyone thinks it laziness etc but it isnt it is a just a condition that we have to deal with and at times it is frustrating and really tests us as parents. I too didnt know of the condition Encopresis until I started doing some research as my boy was fully toilet trained and then problems started when he first started going to Childcare. He is now 4 and the best thing to do is fully explain what and how this is happening to your child. It helps trust me. Explain how their bowel gets blocked and stretched so they dont have feeling and they need to retrain their bowel motions to contract to push the poo out etc, etc. Encouragement when on the toilet like, 'C'mon get those muscles to contract to push the poo out (I use actions to highlight this) tell them that they aren't the only one to that has impacted bowels but to get better you have to sit on the toilet up to 3 times a day and get rid of that blocked poo otherwise you may get sick and have to go to hospital etc, etc. It helps with Movical Half do full flush out and then give them one a day for soft bowel motions my boy has one a day but still soils sometimes but not as much as he first did. I am in the process of making an appointment at Box Hill Hospital for the testings thanks IREADLABELS! That information was so informative. Will let you know how it all goes. Yakult also helps a little too! I have tried high fibre diets and all that but nothing has really helped but hopefully we will have some answers after my little mans testing in May. God bless you all & the important thing to remember is "It's not your childs fault." dont stress about it (or not so they can see)we are in this together & a more relaxed atmosphere will create more positive results - Remember they are little people with feelings too & your reaction has a big impact on their self-esteem |
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| yes it is stressful. Other parents just don't understand, but as others have said in this forum it is much the sme as if they had diabetes or simialr and needed a certain regimen in their (our) lives. My son's dad has an anxiety condition and really doesn't cope very well although he is trying to improve. I feel stressed enough and I am "normal". I have a to do list after reading from here...a dietician and anturopath both of which I am sure I will find here in Port Augusta. Keep smiling everyone - I look forward to sharing more info and stories!!!! THANKS | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Yes, it is a relief to know we're not alone. I found this message board last Sept. and it's been a great support! My daughter is going to be 8yr. in May, and although the encopresis hasn't disappeared, it has improved. Taking a step back from the stress of it all and reaching out to others has given me Hope. And when I'm less stressed my daughter is less stressed and I see improvements in her behaviors. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| WOW! I have tears in my eyes. Finally I am not alone! I haven't read a lot of the detail on the posts here as yet but I have read enough to know that I have come to the right place! I live in Port Augusta, South Australia and have been to several doctors over the years about my son's problem with his bowel motions. Out of frustration I turned to the internet where I discovered the word ENCOPRESIS - a term not used by any of the doctors as mentioned in some of your posts. My son is 6 1/2 years old and has had problems ever since he was toilet trained at around 2 1/2 years. Unfortunately that coincided with the break up of the marriage and shared care has not been the ideal situation to deal with his problem. I currently have sole care and am determined to get some results!!! so here I am...HELP! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hi Wdiane, I wonder if the formula your daughter is on is soy or coconut based? IF (and it's just an IF) your daughter does have FM then soy and coconut are a problem. If she still has reflux have they (docs) looked at operating to rectify? My kids both had severe reflux, projectile vomiting etc but grew out of it before 12 months. I have a friend who didn't have the op until he was an adult 'cos he thought that everyone else had the same pain he did! The Breath Test Booking Centre at Box Hill's phone num is (03) 98950316. They can also give you details of the dieticians who specialise in FM. I have recently had to give both kids 1 sachet per day of movicol-half again. I think their bowels have been sooo stretched by the years of constipation they still need a little help while the muscle tone returns. We are definitely on the right track though. I still believe that giving kids huge amounts of laxatives is only treating the symptoms and not addressing the cause. Also Soy is only a problem for a small amount of FM sufferers - the same goes for Rye. So you may not need as strict a diet as my kids. ie there is Rye bread available that doesn't contain wheat so you may not have to have the full on gluten free stuff. What other fruits does your daughter like? She can have 1/4C stone fruits every 2 hours. The problem with stone fruits is that they contain sorbitol which can cause diorrhea in some people - I think that would be a plus if you have constipation! She can also have peaches in pineapple or passionfruit jelly (you know the pre-made cups in the tinned fruit section) definitely not the pear or apple though. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| To get the complete list of foods for FM in the form of a shopping guide go to www.coeliac.com.au and click on "gluten free products to buy". In that section there is a book called "Fructose Malabsorption Good Product Guide". It costs about $15? Also you can make a appointment for a telephone consultation with a dietician. If you are going to Melbourne already I would definitely try and get the Hydrogen breath Test done. It is done at 2 other places in Melbourne as well as Box Hill Hospital. Box Hill's contact details are on the coeliac website. Definitely ok to eat carrots! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hello fellow long suffering parents. I, like alot of others have just recently found this site and I have been amazed by how similar all our stories are. We have been to doctor's and specialists for years to help our 6yr old recover from his cronic constipation and leakage problems. Never! not once, did any doctor or specialist mention the word Encopresis. I have learnt more from this site than any doctor or hospital has been able to provide. Depressingly, we have suspicions that our 15month old son may also be suffering from the same condition. So, my partner and I are about to embark on the natural therapy road. We have dabbled before but always thought it a bit of a dark art! At the stage we are now, we want to try anything and everything! We live in Brisbane Australia and before we start looking for a suitable practitioner, I wondered if anybody out there could recommend a doctor or therapist here in this city? Also, has anybody tried Chinese medicine and/or acupucture? We will be looking also at FM as a potential problem. I am dreading that he could suffer from that as he eat's like a bird as it is and limiting things like jam, carrots and apples cuts out just about everything fruit and/or veg, he likes to eat! I have more to say about this whole issue and some observations I would like to share but for now I would just like to say thankyou again for this site and for all the suggestions. Best of luck to all in the fight! |
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| As I read each person's entry dealing with their child's encopresis, I 'hear' the same feelings. It helps so much to know that I'm not alone. Everyone's story is different and, unfortunately, the solutions for everyone are somewhat different, but we all feel more or less the same way. For me when I can take care of myself and deal with my feelings, I can cope better and support my daughter with her constipation/diahera/enco presis. I have come to believe too that the medical Dr. doesn't know, the psychologist doesn't know, and the chiropracter Dr. doesn't know, yet at the same time they are a support system. My daugher and I need a support system and I continue to look for supportive people. This mesage board is a support for me...I've learned a lot from all of you. For the past 4+ years, I have gone through a process of learning about, understanding and coping with encopresis. I believe that the process will continue. If my daugher had diabetes, we need to learn to cope with it. This may be no different....where we will need to cope with encopresis. I look forward to continue hearing from all of you. |
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| Hi I am new to this board, I have a 21/2 yr old with reflux and so called slow transit constipation no test has confirmed this. Test have been done came back clear and thats what label the specialist has put on it. I am very interested in this info regarding the fructose malabsorption I would like to try the diet can anyone give me contact details of any of dietitain that is aware of this diet. My daughter has been on restricted diets before to no aval and she hardly eat anything at the best of times now. She is on a prescrition formula which is easier to digest. Any info whould be appriciated. I would like to try the diet before getting test done as I am aready on my way to see another specailist in june down in melbourne at royal childrens hospital and cant afford to go down twice, not this year anyway. Living in sydney my daughter stuffers daily with cronic constipation and reflux sleeps little is on heavy amounts of movicol sometime 4 adult pkts a day. Willing to try anything. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My 11 yr old son and I have been dealing with this since he was about 4. And I just had to respond to joeandpaula and just tell you that I feel your pain. This is the first time I've ever read or posted anything anywhere, but I am so tired of this problem that I couldn't help read up on it a bit more. It's interesting to read that no punishment should be given and that the child should not clean up his messes, as some folks have expressed that opinion. At the age of 11 years old I feel there should be consequences to his actions and so he may lose tv time or video game time because of accidents. He most certainly has been cleaning up his own messes, once I notice the odor, but never on his own accord. I also get no support from my family, as they think it's wrong, and bad parenting, that he does it to get back at mom, and that absolutely he should be punished. I feel the embarrassment he feels should be punishment enough. I got to feeling, too, that he may do it to drive me crazy, until I read from the grown up that had the problem till he was 17! He said absolutely crazy to think that a child does this to get back at a parent. He's taken Miralax for about 6 years now! I am so confused about what to do about this problem. I can't ignore having my furniture and car smell like poo, it's embarassing to me and I can't even imagine how my son feels. Medical doctors aren't helping. I may try chiropractic, although I'm not a huge fan of that route....I just have to try something new. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Most of us dealing with this problem know that what works for some kids may not work for others and sometimes the treatement may only bring an improvement and not a complete solution. We have tried many specilaists over the years, but one that "knew what he was talking about" was Professor John Hutson at the Royal Childrens Hospital in Melbourne - he is highly regarded (was Director of General Surgery for nearly 20 years) and has a special interest in colonic motility disorders. Unfortunately (like all specialists)you may have to wait a while to get an appointment. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Have just received a comprehensive shopping guide in the mail. Has all the products in it that are/aren't suitable for people with FM. Discovered we can't have Honey rstd ham either as it's 7% honey (honey is high in fructose). Also says to be careful of flavoured rice crackers due to the onion pwdr so thought of your girl Soxy. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| No sorry I'm in NT. What is your son's history? Poor little man. Would you consider having the fructose test done as you're already in Melbourne? Has he had any other tests? Coeliac, lactose, Hirchsprungs? Is he on laxatives? Has he been xrayed to rule out a spinal link. My neighbours daughter is 17 and they have only just found out she has very mild spina bifida (from xray) she also had incontinence problems. Hug your boy! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi, now i feel a bit better iam not alone my 8 yrs son suffers fromencopresis i m in melbourne if any one can help who knows a good docter for this. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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