|
|||
|
Message Boards
|
|||
| Hi Jo, my kids haven't been to hosp for the flush out so I have no idea what happens. My son also used to always have wet pants during the day and the doc said it was caused by the constipation pressing on the bladder etc. This has now stopped. He also had diorrhea multiple times a day as a baby/toddler. The paed at the time said it was called "toddler diorrhea" and he would grow out of it. Now I find out it was actually the fructose. He still wets at night but his Dad did until he was 8 so I'm not worried yet. He doesn't wake up during the night even if his bedding is completely drenched. Very heavy sleeper. Also sleeps through fire alarms which is more of a worry! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Soxy, Thanks for the feedback. He is actually going in to have the nose tube as he wants to get him cleaned out asap. I have been doing some more research since last night and am going to ask he gets tested for Hirschsprungs as well. Has your daughter been checked for this? I am going to insist they try and find out what is causing this problem as he has never been normal in the bowel area. Does your daughter also wet at night? My son even wets in the day time sometimes, especially if he goes to sleep. I am going to get his Blue Book (a record book they give you here when they are born to record medical history and growth patterns)out to take with me to see if there was anything amiss when he was little. I did have him to the Paed. a couple of times when he was really small as he didn't seem to be putting on much weight and always had very loose motions he used to do at least 8 a day. I can't remember when they firmed up but must have been around 3 years old. We are going shopping today to get some books, games, colouring stuff for our hospital stay so hopefully that will keep him amused. I was wondering, will he be stuck in bed the whole time or can he walk around and what happens as the stuff flushes out? Do they use a tube at the other end or will he need to use the toilet? I have enough trouble trying to get him to sit as it is! I look forwards to your reply. Jo |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Jo...I would say that the outcome of your hospital stay will depend on your son. Did you ask your Dr. if your son needs be admitted to the hospital? Here in Canada, a cleanout is not typcially a hospital procedure. A cleanout can be done at home as well. We initially tried at home, but my daughter refused to drink the clean-out solution. I requested she be admitted to the hospital...and even in the hospital the nurses could not get her to drink the solution. If your son drinks the solution, I believe it is a 2 day procedure. My daughter ended up having a nose tube and a drip to get the solution in her. (That was the traumatic part. When the solution started going through her, she got physically sick and threw up several times...hence she wasn't getting cleaned out (somewhat more traumatic). They had to slow the drip down....which ended taking 4 days to clean her out. By the beginning of the 4th day, her electrolytes were out of balance, so they needed to put an IV in her. I do have to say though, my daughter was a real trooper through it all. I just kept focused on the fact she was getting cleanout and we were doing whatever it took. It's interesting that your son's spine and pelvis are a bit out of alignment. My daughter's is too. She has had several treatments with a Chiropracter, which has helped a bit with some re-alignment, but the encopresis continues to persist. I believe that my daughter also has intestinal nerve damage due to the chronic constipation and bowel extention, which has a very slow recovery process. |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Ireadlabels, Just wanted to let you know how we went at the doctors today. The xray showed that his bowel and colon are fully compacted and after telling him we had no luck with Parachoc (surprise, surprise) that we really need to get him cleaned out. Therefore we have to go to hospital on Monday for the big clean out. Can anyone give me some feedback on how bad this i so I know what to expect. He is also going to get the Paed. to check him for spina bifida, I think. As I mentioned I wanted to know what would have caused this in the first place. He has never had a day in his life where he hasn't had a bowel movement and always ate plenty of fibre and only really drinks water and the odd soft drink or milk. I will also ask about the fructose test. I know his spine and pelvis are a bit out of alignment so there may be nerve damage causing all of this. It will be interesting to see how we go. The doctor has been doing some research into all of this and did discover Movicol was the better ongoing treatment, moreso than Parachoc. He said we could need to use it for at least a year, probably longer, to get the muscles working again. I shall give you all an update on Thursday if it has worked by then. Look forward to reading your posts about the hospital stay. Regards, Jo |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hello, Don't know if this will help anyone else but lately my kids have been going straight to the toilet after a long warm bath - like 1/2 hour baths. Maybe on younger children a warm "hot water" bottle on the tummy would have the same effect? Not sure what you call them in Canada/US but it's a flat rubber bottle that you put inside a fabric cover and sleep with at night when it's cold. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| From what I have read on the internet, the Movicol half is the same solution as what my daughter's Dr. prescribed, but it is called something different here in Canada... (Colyte). When I asked my pharmicist about Movicol she had never heard of it before. We tried the Colyte at home again a few weeks ago and there was no way my daughter was drinking it...no matter what we tried it with. (Didn't try Gaetorade though). The past week has been somewhat better again. Regular bowel movements which are quite loose (everyday or every other day at least) with fewer soils. The Senokot works well for her. At least she doesn't have to go back to the hospital for now. |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Jowel, Did the doc mention Movicol-Half? My understanding is that parachoc only makes the outside of the poo slippery - doesn't actually mix in with it to make the stool softer and therefore easier to pass. Also you can do the flush out with movicol at home. You just increase the number of sachets each day. Far less traumatic than going to hospital. However I don't know your full situation so please discuss with your doctor. Be interesting to see what the x-ray shows! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Everyone, Just thought I would give you an update. Went to doctors on Friday and he thinks it is constipation and we have started the parachoc again. He was very nice and understanding of our problem and explained things a lot better than other doctors I have seen. It also helped that I had a lot more idea from the info I have received from you all. He has given me a referral for the x-ray and I tried to get that done that arvo but x-ray place closed at 2.30pm!! Will call in again today and see when I can get done. I have another apt with doctor on Friday arvo to see how he is going and get results. I have started the parachoc on 20ml dose but haven't seen much yet. I will see how we go by tomorrow and may up dose if needed. My son has started swimming lessons today at school so I hope it doesn't work all in one go or it could be a problem!! The doctor also said if parachoc doesn't work we can put him into hospital for the clean out. I don't think this is ideal but I have never had much luck with these laxatives, apparently it can take up to 6 months to get everything out. How are things suppose to return to normal if it takes this long? Anyway, I will give you an update next week. Kind regards, Jo |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| If it's exactly half the normal, I may as well use 1 normal every two days which my daughter is happy to do. I put in a little ribena and she seem to drink it quite easily. Thanks for the feedback. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi RJanie, Movicol-half is exactly half the dosage of movicol. I checked with my pharmacist who looked it up in his "book". Follow the dosage on the pamphlet. I would recommend using it daily not alternate days. You can also increase/decrease by using half of a movicol-half sachet etc. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi all. I've made an appt with a new paed who apparently deals with this issue often (at least I'm not alone). I have been far more regular with the movicol, on alternate days and this has definitely settled things back down. i almost look forward to the washing this weekend! My GP said this is such a common problem but does not seem to think it has affected my 9 year olds self esteem. Truth be told I think it affects me more than her! Anyway, the paed appt isn't till August so I'll keep managing it in the meantime. Can someone tell me what's the diff of movicol and movicol half? Ta rjanie | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Thank you | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Soxy, the children's one is called Movicol-Half. ie it's a half dosage. Can be used from 2 years of age. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi. My daughter's Dr. hasn't prescribed Movicol. I have never actually inquired about it. I noticed on most websites too that it is not recommended for children under 12 yr. I will inquire next appointment. My daughter has always taken Lactulose and Senokot. I wonder if the Co-lyte solution that she was prescribed is the same kind of osmotic laxitive as the Movicol. Anyway, I tried everything to get her to drink it and it was a no go. I truly believe it makes her sick to her stomach. The crazy part again of encopresis is that for the past 5 days, my daughter hasn't soiled at all and has had regular bowel movements. And her stomach is soft again. The previous 5 days before that were disasterous. Anyway, it truly is one day at a time. My husband believes that if we "stay calm" that the day will come when it simply ends. (much more optimistic than I am). He has been the calm one from the start and has been more accepting of our daughter's encopresis than I have. I do know that when we are calm, our daughter is calmer and when we're stressed, she feels more stressed and there is more constipation and soiling. Thanks all for your support and understanding |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Also my daughter has had a few infections. I think it is more luck/good management that it doesn't happen more often. I wonder if your doctor is getting you to use enough Movicol to do the flush out then maintenance. If her bowel is staying empty perhaps the continued soiling is because her bowel has been so stretched/nerve damage etc. that she doesn't have the muscles to "hold on" to it. Have you had xrays done? Has everything else been ruled out? Hirschprungs, mild spina bifida, one doctor even said it could be worms! I don't worm my kids and no stool sample has ever found any (or eggs) so it's up to you with that one! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hello Rjanie, can you get your husband to read our posts? Having 2 children with the condition I have seen every coping mechansm they can possibly think of. Denial of an accident, hiding dirty undies, saying that the sibling put "it" in their pants. I can't stress enough how the change to the Fructose/fructan free diet has changed my childrens lives. My son can now associate "pain" in his tummy with the fact that he needs to go to the toilet. Ask your doctor about getting a hydrogen breath test done. It is impossible to self diagnose due to the huge range of foods involved. Wheat, Rye, apples, pears, onion - which is in everything from chips and dips to soup. Some yoghurts and snack bars now have fructose added as the sweetener. Apple paste is in yoghurt, snack bars, and cereals. This list is just the tip of the iceberg! This condition causes either constipation or diorrhea depending on what "bugs" are in your tummy. They feed on the unabsorbed sugar and either add water to your stool (diorrhea) or take it away (constipation). Make a dietician appointment too. Everybody hug your children - why on earth would they "choose" to soil their pants??? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi, I'm new on your site. My daughter is 9 and we have been dealing with this issue since the day she came out of nappies. I see a paed gastroentoroligist and he says the same thing every time. Keep using movicol. the situation is not getting better - although we have good phases and bad. Right now we are in the thick of it and its time for a review. Besides the upset it causes with my daughter, my husband and I argue about it too. He thinks it is behavioural in part and can't understand the lack of hygene issue. I can't either but am more compassionate about it. My main concern is the leakage into her private parts and the lack of understanding with the consequences of this. I am surprised there is not more rashes and infections present. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi all, I will definately mention the receptionists' behaviour to the doctor. I work as a receptionist in the medical field so was quite astonished at her approach. It made matters worse that I was ringing for the apt from work and a room full of patients had to learn of my sons problem!! Not that I am that embarassed about his problem now I know it has a name, thanks to you all. Soxy, I am feeling for you both, having a bad week. We have had a pretty good one so far. I think we only had 1 accident at school and he only had a couple right before I picked him up from after school care. It makes it even harder when they wont take their medicine. I am dreading starting this again as my son hates any kind of medicine. As for the mum in the USA I will have to try and find the thread I was reading as it was on my other computer (of which our puppy just ate through the power cord!!) |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| OMG Jowel, when you see the doctor tell him what the receptionist did. Soxy, will your daughter drink the movicol half? You can mix it with Gatorade or in Aus we have staminade too. Maybe that school in the States can look after all our children for a few months since obviously they have a better idea than us. If that poor mum is still active on the other posts, tell her to print out all our stuff and sue the school for undue stress. Maybe if they charge all of us this condition will get some more recognition and understanding. How embarrassed is that school going to be?? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Good for you Jo for standing up for what you and your son need and getting an appointment. And yes, it is scary to think that someone might report us to the child protection authorities. It is so important to talk openly about this and educate the professionals as to what enco is and to increase the public's knowledge. We're (I'm) going through a difficult week. My daughter is plugged again and has been soiling a lot....even at school. She refuses to drink the Colyte solution that her Dr. prescribed for a clean out. (It makes her sick to her stomach). The only way we could get it in her last time she had a cleanout (just over a year ago) was to put her in the hospital and put a tube down her nose. And even then she kept throwing it up. It took 4 days in the hospital to clean her out. I really don't want to have to do it again, as it was traumatic for us all. It is summer here in Canada...and she always does worse when she's outside playing and too busy to stop and go to the toilet. |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I was reading some posts on another website this morning and was alarmed to read about this poor lady in the USA who was being investigated by Child Services. She has 3 teenage kids and the yougest (12 year old boy) has enco. She has been trying to get help without any luck from doctors and it was the school who reported her. They didn't believe that enco existed and thought it was bad parenting. God I hope the same thing doesn't go on over here (Australia)! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Just letting you all know I have booked my son 7, into doctors for next Friday. I am going to get the xray done to see if this is the problem. Have to wait till then as he is the best doctor I know of in town and he is hard to get into. I got the 3rd degree from the receptionist who wanted to know why I particularly wanted to see him, how old my son was and what was wrong with him!!Never the less she gave me a spot and that's the main thing. I shall keep you all informed of the verdict. Cheers Jo |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| It's very interesting how after posting my previous message that today my daughter had a bad accident at school...after having said that she typically doesn't soil at school. That's the confusing part of all this, it's full of surprises. I feel all the emotions...fear, sadness,powerlessness, and more. I can't help but wonder if, at an emotional level, my daughter is trying to say something??? Again, I believe, it's unconscious even for her, so at a conscious level, she doesn't even know. |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi everyone and welcome to the newcomers. I too appreciate the message board so that I can release some frustration and be reminded that I am not alone with my feelings. My daughter, now 8 years old, was diagnosed with encopresis 4 years ago. She (we) have definetely come along away, however, the soiling continues. As with others, she cycles from good, to bad to worse and then good again. Without the support of others, I'm not sure where I'd be. My daughter's teacher has been so supportive and prompts her throughout the school day to go use the washroom. At the same time, my daughter doesn't typically soil at school. Interesting heh? 99% of her soiling is after school in the playground, or at home. I've finally come out and talked to many of my daughter's friends parents as well. I have simply told them that my daughter has problems with her bowels which she can't control (which is true to some extent) and if they see that my daughter has had an accident would they prompt her to go change. I haven't had any other parent not support me, so far. There's days I weep and worry but I have to consistently remind myself of my daughter's strengths. I believe that my daughter's encopresis is phyical to some extent in that her bowels have been so stretched and the nerves are damaged and not working as they should. I also believe that much of my daughter's toileting behaviours is unconscious and based on how she processes information in her little brain. It seems she doesn't care because she won't acknowledge there is stool in her pants, but I think she really does care. If it were as simple for her as stopping and going to the toilet...she would. But it's not...hence the on-going saga of us all trying to figure out what to do and to understand From my experience, I agree too that an xray is essential to determine the extent of contipation. Will go for now. |
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Sandi and welcome! Are you still using the movicol though? The flush out will get out the main mass, but you still need to keep up a maintenance routine to keep the stool soft. Did you do the flush until she had diorrhea? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
|
Copyright © 2009 Yahoo! Pty Limited. All rights reserved. Advertise with Us - Privacy Policy - Terms of Service - Help |