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| Just wondering if anyone knows much about or has any success with biofeedback in regards to encopresis? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| check out celiac disease, this can cause constipation. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Just thought I'd let you know that in Canada we don't actually have MOVICOL. I googled the ingredients of Movicol and it contains "polyethylene glycol 3350" along with other ingredients. My daughter was prescribed the polyethylene glycol 3350 only without the other ingredients...and it comes in a powder tasteless form. You can add the powder to any drink and you can't taste it at all. This was OK'd by her Dr., and like I said in my previous post...it works. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Same thing happened for my daughter...on palpatation she had soft tummy and no discomfort...but the xray showed that she was plugged significantly with stool. Nonetheless, she had a cleanout. I'm from Canada and Movicol comes in a powder, tasteless form. So mixed with any liquid it has NO taste to it...thus my daughter has no problem taking it. In my daughter's case the Movicol has definetly helped to keep her intestine cleaned out. She took Movicol daily for 10 months...slowly decreasing the amount... she is currently not taking any and she has had no soiling for about 2 months, and a bowel movement almost daily. It has given us hope...can't say it's cured, but we take one-day-at-a-time, and focus on what IS working, and pray that it will continue to improve. |
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| She had an xray that showed she had "significant" faecal loading. However on palpatation she had a soft tummy and no discomfort. She goes to the toilet every day or second day. So I dont know if she really is constipated or not. Her paediatrician said to use the movicol...its awful! It turns everything to liquid! is the experience of others who have used Movicol? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hi my son has just been diagnosed with encopresis and the dr has him on Movicol you post sugests that you were going to try this and i would like to know how it all went 4 you and your child? Thank you Amanda | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| nigelwheaton...If you google "slow transit constipation" you will probably find more info. From what I have read, the first step of treatment for slow-transit constipation is first to ensure that the medical therapy has been adequate. eg: "Movicol" and other stimulant laxatives in combination with a supervised and consistent toileting program have been tried. Further testing for slow-transit constipation is done after a failure to respond to an adequate trial of laxitive and behaviour modification therapy with good compliance. There is a Dr. J.M. Hutson from the Royal Children's Hospital in Melbourne Australia that has done research on encopresis. You might want to google that name. If your Dr. is not taking the your daughter's soiling (encopresis) seriously, I would find another Dr who you feel is supportive. The very first step is to ensure your daughter is not constipated...and if she is, she would need a clean-out. The only way you can know is for her to have an xray done. My daughter has had a clean-out by taking a large amout of Movicol for several days in a row (on her Dr.'s recommendations of course). Hope that helps. |
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| Our nealry 7 year old daughter has had soiling issues for...ever? It seems! Our paediatrian says her behaviour is "age appropriate" and I just know its not. How do you know if the problem is encopresis or slow transit constipation. What is the first step, a referral to a paediatric gastroenterologist? Would greatly appreciate advice. Just started Movicol-half and am worried this will make it worse. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi, I just come across this knowlegable group when I was searching about an incident happened this evening. My son's friend is sleeping over in our house tonignt. They(both nearly 9 years-old) had their dinner and went to his room to play. Two hours later I went to their room to put them in bed, there was a omg smell in the room that I instantly knew what had happened as it happened before in one of his friends previous visits: He soiled his pants and was sitting on it playing happly like nothing happened! I have asked both of them out of curtesy if anyone had an accident. My son said no, and he said no. I asked him if he wants to go in the toilet and check if there is something smelly in his pants. He called me that yes there was poo in his pants! I gave him a shower, put his very messy underwear and our borrowed pyjamas in the dustbin and try to chat about the subject with him gently. He told me he is shy to go to toilets apart from his house and it sometimes happens. I asked him if the situation after what happened wasn't a bit more dificult for him than going to toilet in the fist place! He said yes but put everything together he sounded the whole thing was normal for him. No apology, no regret, no brain storm...just denial and excuses. I found this very strange for his developmental age and stage. This is the second time it has happened. I started to worry about him. I want to mention about ENCOPRESIS to his mum who ,I think, does not realise he might have a health problem. I think things I read here matches with his sitiation: constipation, denial, immaturity ect. Do you thing I should tell to his mum about encopresis? Do you think there |
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| Hello, my grandson is still soiling his pants at 17 and now will barely leave his room. I feel very helpless to help my daughter with him as I live three hours away. I was wondering when your husband got over his symptoms as we have been told it most often dissappeards in pubert at some stage. Kind regards, Lynne |
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| Hi My name is Kristen and I live in Canada. I was just reading some of the posts and I get the feeling that we are all dealing with this problem and are getting nowhere. I know there is a solution out there somewhere. I think that more heads are better than one so to say so I was hoping that we can ban together to find an answer. Please email me if you would like to be in contact for a support and hopefully a solution group. My email is jcmmjlt@yahoo.com.au |
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| Hi, I was amazed to read your post because my step daughter's case sounds exactly like yours. However she is now 17. We have tried everything we can think of to help her ie, stool softeners, charts, psychiatrists, pediatricians, etc. etc. Nothing helps. She lies about it all the time. She tells you what you want to hear. She takes no responsibility for it. She stashes her soiled panties all over the house. It started when she was potty training and her parents were going through divorce - about age 3. I kept thinking she would grow out of it or that it would get better but it only seems to be getting worse. I feel like I am losing my mind and I'm trying so hard to be patient with her and not see her as the problem, but I don't know where else to turn or what to do. I feel like its become such a habit for her and that she uses it as a stress relief. If you or anyone finds any help or anything that works, please,please let me know. I'm desperate. |
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| Don't beat yourself up about this. Most of what I have found about this problem is ignornance on the part of the medical profession. All I know for sure is they don't know much about the problem or actually it seems like a range of problems when you read all these posts. I am not seeing a light either but today I am trying to minimize discussion about it and not heap more stress on myself and my kid. Onwards and upwards. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| We would go in an sit in there with him with a timer. We had the same problem too. Good luck. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| We actually were able to verify last week via an xray and an exam that he is cleaned out but now his symptoms are worse than ever. He is soiling constantly and isn't producing output in the toilet at all. I think this is related to how much laxatives he was taking to get cleaned out. We are beside outselves. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Wow...I just googled encopresis because I have a 13yr. old daughter who is has encopresis & enuresis, I feel like I'm about to have an emotional breakdown. I just realized the issue with encopresis. I don't know what to do. She has had a hard life thus far, she was in group/foster homes most of her life and the encpresis and enuresis has been a factor of why she was not adopted (I was unaware of the encopresis until recently). She is bilolgically my 1st cousin, I had found out about her being in the system about a year and a half ago, she has been living with me for a year now, and have tried to help her with the enuresis issues but I have had no luck. After reading this forum, I have gotten lots of ideas that I plan to inplement ASAP. Its just hard for me to comprehend how a 13yr old can have this problem and not say anything about it. She has always had an odor that I questioned and investigated as much as possible and just couldn't figure it out, now I know why....Any suggestions on what I can do? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| faithcooleyintheusa...wha t type of treatment is it?.....just curious. How old is your son? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I can't see the end of your post. Can you please send it to me? We haven't been able to get my son cleaned out after 6 months of treatment. Please help! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My daughter will be 5 the end of Nov. She has had touble with constipation since a baby. She refuses to even sit on the toilet, except when she has to pee. Any suggestions? I've tried reading books, singing, a special toy. If I do get her on the pot, she jumps back off after 2 seconds. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Has anyone heard about Nu-zymes? Someone on another message board says it worked for her child | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| How old is your daughter? Yes, it's a good idea to get an xray. Personally, I think that's the only way you can know for sure if she's plugged or not. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| OMG! this sounds just like my situation & i've been trying to find someone talk to about it. this is the strangest thing ever to me, i mean--why?? is this happening??? i've tried everything to get her to stop. i'm going to make her a dr's appt & tell them i want an xray to make sure she is ok. i've asked b4 & they say she doesn't need 1 but i think we should give it a try & see what happens. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| jamiesmum08....this is one of the previous postings....."Because STC is a nerve disorder perhaps the feeling of the knickers around the tummy etc disrupts the sensation further?" Not sure if you read it or not. |
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| i have gone back and read some of the posts. My daughter has been having regular (usually once every 5-8 weeks) clean outs, first and the hospital and now at home. we have tried everything and have had a barrium enema (not sure of the spelling sorry), heaps of x-rays, scans and you name it. our paediatrician doesn't know what is going on or why it isn't getting better. there are some great programs out there, but not everthing works for everyone. if you are starting out, you may want to look into the "sneaky poos" program. if you need more information about it and how it works, please email me and i will get it to you. some kids work with dietary changes, some work with removal of certain types of foods, and in our case, no luck. my daughter has been tested for everything from cealics right through to lactose intolerance, she has had more blood tests and been poked and prodded to the a phenonminal amount. i have been told that in some cases it is caused by child abuse, i have been told that in some cases it is caused by an accident/incident during toilet training (i.e. a child falling into the toilet or having a couple of bad experiences). what ever the cause, our experience has been that very few gp's have any idea what incopresis is or how to deal with it, and even some who do know what is it, use it as a broad label without doing some of the testing. many gp's we have come across have said it is psychological, some have said our daughter was "lazy, stubborn, naughty" and i have even heard that it was becuase i was a single parent at the time. At present, our daughter misses many days from school and while i hope for a light at the end of the tunnel, i can't see it yet | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi, My name is Jody and my daughter has severe encopresis. She is 9 years old, and has suffered from encopresis for most of her life. she is under the care of a paediatrician, dietician, continence nurse, psychologist, gp and others. we thought we were alone, we spent the first 5 years trying to get some help and someone to realise that we had some serious issues and now we are at a stage that they don't know what else to do for her. i would love to be in contact with some one else who is going through it. if we can pass on what we have learnt, then that is great, but just someone who understands what it is like to have (as some parents have put it) "the stinky child". please feel free to email me: jody@JodyRMurphy.com.au | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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