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| hi my son had hsp over 12 months ago the dr's at melb's childrens hosital explained that only a small percent of children with hsp develop kidney problems my son falls into this category. His problems are reasonably mild he has protein in his urine which makes his blood pressure rise so he is on medicine for now at least they predicted that he would get better but we are still waiting. At the moment we are having a few health issues as he really hasn't been well since all this started, really it's been one thing after another, i am worried that he is having a relaps. Has anyone heard of children relapsing after 12 month period? Also is there anyone who's children have had chronic constipation and tummy pain since recovering? To re address the problem of kidney involvement it can range from mild damage (like what my son has) to renal failure and in a samll percent of children wo go into renal failure some don't recover but that is a small statistic and the nephrology department assured me that the complications are very broard and that renal failure is quite a severe reaction i hope this helps :) |
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| hi.. My daughter 8 has just been diagnosed 3 weeks ago. how is ur daughter now? It doesnt seem to be getting better.. as u said no sooner does she perk up she goes back down again. she is on prednisolone which i guess has helped but as we tried weaning her off she had a relapse.. Has ur child been on this drug? They keep telling us about possible kidney damage.. do u know anything about that? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| how is ur child now? my lil girl 8 has just been diagnosed :-( | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hi there.i had hsp when i was 5 years old.i'm now 33.i remember i lot of pain and discomfort but got through it.i think i was in hospital for 3 weeks.from memory the doctors used steriods to boost my immune system and i had all the symptoms that your daughter has.i wish you all the best.rick | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi Fiona, we have just spent 3 days in hospital with my 5yr old daughter who slowly over the past week started showing symptons of swollen joints, the red/purple rash & tummy pains. We took her straight to the Mater (who were brilliant) where they diagnosed her with HSP. I had never heard of it before. She is on prednisone and nurofen 4 hourly. We got home on Saturday but she's still very uncomfortable, this morning she woke with swollen eyelids and couldn't open her eyes. I hope and pray that she recovers soon and NEVER has to go through this again. I hope the same for your daughter :-) The Mater told us it was quite rare with only 4 IN 100,000 cases. All the best - i sincerely wish you all well. Jo | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| To the lady who was looking for some relief for the pain for her daughter...I think that was a couple of months ago but if not prednisilone had instantanious relief for my daughter. she didn't eat for weeks and within 4 hours she slept then ate 6 slices of toast and was so hungry! of course you cannot stay on this drug and weaning her off was hit and miss and it kept reoccuring, however if she ever had it again I would put ther straight on the drug so the poor mite did not have to suffer. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi there My daughter had HSP over 2 years ago and touch wood, I dont really want to say it, but has now recovered and has no symptons. i was told by the specialist at Childrens hospital in Mlebourne that 50% of children its a once only thing but the other 50% have reocurring bouts throughout their life. It was the most horrendous experience and she was only 4 years old and ended up hospitalised 3 times in 6 weeks due to dehydration from vomiting and not eating or drinking. The stomache pains were the worse symptons as well as the joint pain in her elbows. The actual rash looked revolting but did not bother her. I was reading some of the other posts and people seem to worry it can be passed on. from what i have learnt it is auto-immune only, no one can catch it nor pass it down in generations, I do however worry she is predesposed to other auto-immune diseases as they are allergies but the allergan is unknown. I hope your daughter gets better soon |
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| Hi there. My daughter (nearly 4) has just been diagnosed with HSP. I saw your post on Yahoo, and I just wondered how your daughter is doing now a few months on?? Fiona :-) |
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| I am now 36 years of age and initially suffered from HSP at the age of 11 - finally diagnosed with HSP at the age of 18. I still suffer from HSP periodically. I have taken medication Prednisone for relief in the past and now I just put up with the pain because of the side effects from the prednisone. I note that you have 2 children and in 2007 there were no signs of HSP with them - is this still the case? My husband and I are looking at commencing a family now and I don't wish this disease upon anyone. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My daughter is 3 and was diagnosed with HSP almost 2 weeks ago. The rash that was so horrible looking on her legs was just starting to heal when bam! they reappeared with a vengeance last night. They spread so much faster this time. It is so scary! As a parent, I feel so helpless because there is just nothing to do to treat it and it makes them feel so rotten. She had the belly aches and the joint involvement too. Her legs just hurt her and she goes from the active little girl to a grumpy little couch potato. It is just hard for me to believe there is nothing out there that could make them feel better! This second round, even thought I know what it is, is soooo frustrating. If anyone has found something that provides relief, please post! | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My son has been diagnoed with HSP in the last week. He is 11 years old and has a strep infection which they are treating with antibiotics. He has a history of allergic reactions.This is just awful. He is in pain, has swollen feet, arms and he is now complaing of back pain. We are testing his urine and blood pressure daily. He has had a blood test and is having another this week. We saw a specialist last Thursday and will see him again on Wednesday. I phoned the Kidscare Line tonight because he was in so much pain. Looking forward to an end but from all I've read here I don't think it will come quickly. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My 4 year old daughter was diagnosed with HSP on Monday. She had a cold a week ago then started vomitting on and off for a week. On Friday she had swollen knees and complained that she couldn't walk. The rash started on Saturday evening with itching ankles. On Sunday it was red and by Monday it was dark red/purple and didn't blanche with the glass teat. We then saw a third GP and were sent to the children's ward. The third GP correctly diagnosed HSP and it was confirmed in hospital. The whole rash thing was very frightening but I was given good advice all along. We are being followed up by the hospital........ | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I was diagnosed with hsp when i was about 13 i had to deal with arthritis pain in my knees, rash all over my lower body, severe nose bleeds, chronic pain, urinary problems, and some other symptoms. the serious problems lasted about 6 weeks however the nose bleeds lasted about 3 months and for about 6 years i had chronic kidney infections and urinary track infections. i was placed on numerous medications including a steroid therapy for my immune system. i was told that due to the rarity of the condition especially for females in their teens that was the reason it was so severe for me. To this day i still have pain in my knees however it is no longer unbearable and i can function normally. I am now 23 and i have a child and i am worried that i could pass on the ability to contract hsp or that it may be present now. does anyone know if it is possible to get hsp or to have a pre disposition for it genetically? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My 4 year old son has just been diagnosed with this. He stayed overnight to do test of blood and urine. There seems to be no kidney or bowel problems. He can hardly walk. Can anyone recomend a "specialist" that could answer our questions better than our reg. doc? | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi! my son whos is 10 years old had this HSP for 3 weeks. He has this constant discomfort/ abdominal pain. The first doctor told him to take advil and i have second doctor told him to take tylenol. What do you think the best medicine? For how long the rashes be gone because it come and go. Thank you. Hope to hear from you . | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| I was diagnosed with HSP last year when I was 19. I was hospitalized for two weeks with severe stomach bleeding (and had the purpura on my body) which later progressed to seizures. I was on the steriod Prednisone for a year before everything seemed to clear up completely. I recommend contacting a Children's Hospital (in the US) if you need help or information because they are great! Ask for the rheumotalogy department. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My daughter, too, was just diagnosed with this disease yesterday. She's a spunky 2year old who loves to frolic around the house...but as of yesterday morning, the swelling in her feet, ankles, and legs prevent her from being mobile. My main concern now is that there seems to be some swelling in her lower back. I cannot find any documentation that describes this being a part of the overall issue. Has anyone else experienced this? We do know that she has Strep right now as I type--which is the most likely cause of the onset of HSP. I feel that our documentation of this rare, but frightening, disease will serve to help the finding of a cure--or something to help the little ones feel better. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Hi- My 4 yr. old son was diagnosed with HSP last month. He has severe swelling and a horrible rash on his ankles. He then started vomitting and having abdominal pain. He kept getting sicker and sicker. It was so upsetting because the doctors didn't seem to know much about it and told us there was not treatment. He ended up in the hospital after he started showing signs of blood in his urine. They gave him some IV fluids and kept him for a few days. He then got better and was discharged. He had another round of rashes and now he seems OK. How long should the urine be periodically monitored for blood and protein?? |
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| wow seems to be a spate of HSP, i had this condition so long ago i cant remember a lot of detail, i know i was ill for about 12 months but then i was never given steroids. from what i have read the condition always follows a virus (colds normally) i dont remember ever having any gastic problems but did have terrible jiont pain and swelling along with the rash that i still have on my lower legs 30 years later.... i recovered well from the condition after 12 months but had jiont pain for a long time, they could never say wether it was the HSP that caused it... i suffered heameraging from the nose during the ilness so sever i required blood tranfusions.. blood noses continued through out my child hood until i was about 14 and had my nose burnt out, which solved the problem. I have kidney damage to the vascular system of the kidney that causes my blood pessure to rise due to incorrect flow of blood through the kidney, this is controlled with medication, other than this i lead a normal life, have 2 kids of my own and they have not shown signs of it (we were told it was hereditary)... remember my lasting effects are probably due to the fact i had the condition 30+ years ago and was never given any steriods or immuno drugs... i spent long period in hospital for monitoring and pain relief, daily blood tests and was not allowed out of my bed even for a bath... i have a friend whos child had this condition about 10 yrs ago, she was fully recovered within 8 weeks... isnt modern medicine wonderful!!!! any further questions welcome.... karen | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| My daughter was diagmosed with this just last night She is almost 5. Yesterday she couldn't walk her feet were so swollen we took her to the hospital. She dosn't have tummy pains but they told us to bring her back in if she gets them and her urine still needs to be checked. She has had a rash for over a week, and the doctors had done blood tests on her last week because of the bruising on her legs. she had her 4 year old immunisation 3 weeks ago so I don't know if that had anything to do with it. She also has had a cold recently. Today she seems fine, and her ankles arn't quite so bad and she is walking and as happy as can be. I think we are going to have to watch her and look out for the symptoms because it can reacurr. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| my son who's 3 was diagnosed HSP since 31/12/06 and is still having rash spots recurring. Thank god his abdominal pain and vomitting has stopped but occasional joint swell would occur but will go away within a day or two. QUESTION: Could anyone share your experience how one can tell of signs of recovery. What are the causes to HSP? I also have been sending his urine for tests of kidney condition regularly. All's clear for now. |
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| My son was diagnosed with HSP right before thanksgiving and we have been dealing with it since. He has been on predislone which is a steroid but is not getting any better. He had a kidney biopsy done last month to see how bad it is affecting his kidneys. We just went back the other day to the children's hospital to get the results and I didn't get the results I was wanting. THey have now put him a immune suppressant. The reason for this drug is to get his protein level to go down, his protein level has been to high. So now they are gonna try this immune suppressant to get it down. As long as his protein level stays high it scars his kidneys even more. I'm hoping for a miracle. If the immune suppressant doesn't work they are gonna do a different drug in the hospital. You just have to deal with this medical condition one day at a time. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| hope your son is improving, condition can last months from my experience... with cortisiods your son should be showing much improvement by now... all the best and post his progress... regards karen | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| wether the condition is rare will depend on your age now.. in the 70s it was very rare and even in the 80s but now it seems to be getting more common.. in 1976 when i contracted this condition i was the first recorded case in victoria and one of the first 10 to be diagnosed in australia... took 4 months to get a diagnosis and was initally diagnosed as leukemia. thanks to modern medicine the condition is normally controlled and cured within weeks, i spent 7 mths in hospital at the age of 4. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| i had this diease when i was 3...all iv been told is that its rare... | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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